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Central Pain after Neurectomy
It’s good to talk with someone who is going through the same experience although I wish no-one was. I have an appt with Dr Tim Davis in August; hopefully he can help. Thanks Dr Towfigh for the recommendation. I too use a Tens; it is a life saver. I am also going to have a dynamic Mri before that appt and my rescue surgeon will also be reading it. I don’t blame my rescue surgeon; he saved my life. The general surgeon is the one who caused all the damage and then just injected me with kenalog when I complained about the new pain. So I now have a deep hole above the surgical site where the kenalog destroyed my tissues. I refused a third treatment from him and started becoming my own advocate. I wish my triple neurectomy had been more successful but at least the mesh that was too big for me and was cutting into me is out. I try to look at it this way. I have never wanted to be a bitter person. I am determine to become an active person again. I try to walk every day and find that helps with tight muscles in my abdomen and back. Also hot baths and heating pads. How about you, any tips? We have got to support each other and get to the other side to a pain managed life. I started a support group for folks like us; not very active, but if you want to join you can email me and I will invite you to the group. I will post the email in the next post. I hope you are hanging in there. I am reading a wonderful book about the Oregon Trail; here’s a quote from the writers father when they were taking a wagon trail trip and the boy averts a crisis and the dad says this to his son: All I am saying is that sometimes you’re doing quite a lot by not doing anything. You’re not quitting. You just keep going. That’s the pioneer spirit.”