I had robotic bilateral inguinal hernia repair with biologic mesh (Lifecell Strattice mesh) 6 weeks ago. After surgery, I developed a 100 degree fever, left armpit lymph node swelled up, had terrible sweats, burning eyes, pounding heart, random fully body goosebumps, and felt sick. My heart rate also jumped up from 60 to 90. My fever resolved in a day, but I still have hot flashes/sweats especially at night, pounding heart, goosebumps, and my left lymph node has not fully resolved. I also get weird nerve sensations of a numb quality on the surface of my skin on my legs. As of two weeks ago, I have started to feel more sick for longer periods. I am very cold during the day, have malaise, and feel very run down. My testosterone has also plummeted. My nervous system and immune system feel like they are on overdrive. Before all this I was very healthy with immaculate blood tests (including my testosterone).
I have seen my primary care doctor, a cardiologist, neurologist, rheumatologist, and spoke with several surgeons. The consensus is that I am reacting to the mesh, either as a heightened foreign body response or some sort of allergic response. Every blood test I have taken has come up negative except my testosterone. My white blood count and SED rate are normal.
I was diagnosed with chronic fatigue syndrome CFS/ME three years ago, which is an immune dysfunction. I have recovered from it since with occasional flareups once a year. My current symptoms do not feel like a flareup. I have heard mesh can aggravate immune disorders.
It has been recommended to remove the mesh if it can be safely done. I was also informed the sooner I get it removed the better my chances of a negative complication from surgery. I heard at 3 months it gets harder to remove.
I am looking to have Kevin Petersen MD remove it via open surgery (incision from belly button to pubic bone) with a tissue hernia repair. My hernias were very small.
I was wondering your thoughts? My whole life has been turned upside down since this surgery. I want the mesh out, but want to know how safe it is.
Log in to reply.