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Recommendation in USA (South)
Hello,
This is a follow-up of this post ( https://herniatalk.com/forums/topic/mesh-less-repair-after-8-month-disaster/ ).
Long story short : Surgery in February 2024 with Dr Conze, no mesh, technic Minimal Repair. Post operative pain very very high. March start to have huge digestive issue (permanent stasis of feces near hernia site, leading to infection / fever). Ultrasound shows nothing. Colonoscopy shows nothing coherent. MRI result was incongruous.
Gastro-enterologist hypothesis : Crohn.
Took treatments, changed diet to a very low residue diet, 0 sugar : no result.
Gastro-enterologist doesn’t believe anymore that it’s Crohn : it doesn’t respond to any treatment and the results are incongruous :
Moderately elevated calprotectin (100-158)
Absence of typical granulomas or ulcerations
Inflammation described as mild
Absence of characteristic skip lesions
Normal CRP outside of crisesJust like I told them from the beginning, it’s not Crohn or classic IBD. It’s the surgery that messed up something. I have a few hypothesis :
Hypothesis #1 – Post-surgical neurogenic dysfunction:
Surgery may have altered local digestive innervation
Would explain localized motility disorder
Consistent with stasis and secondary infections
Compatible with worsening during effortHypothesis #2 – Post-Surgical Anatomical Defect or Adhesion :
Rationale: An anatomical defect like a tear or adhesion might have formed post-surgery, leading
to mechanical stasis of bowel contents. This could explain the localized pain and the inflammatory
cycle due to retained fecal matter.
Supporting Evidence: The progressive nature of symptoms, particularly the sensitivity and pain
with physical effort, suggests a mechanical issue at the site of surgery.He recommended me a few tests such as “Nerve hydrodissection” (as I still have weird feeling there), “Barium transit with videofluoroscopy”, “Dynamic abdominal Ultrasound and/ or MRI”, “Colonic manometry”.
Where I’m now (in Central America), they don’t provide this kind of examination.
I’m looking for recommendation, I need someone to take my case seriously (And Dr. Conze doesn’t answer anymore, a real shame !). Could be in the US (South preferably…) or Europe or elsewhere.
Do you have any recommendation ?
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This discussion was modified 2 weeks, 4 days ago by
Côme.
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This discussion was modified 2 weeks, 4 days ago by
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