Suffocation after Removal

[Mesh]

Immediately after removal with trip neurectomies 2 years ago I have experienced intense suffocation bouts to the point where I black out and fall. Once in my driveway where a neighbor found me and once in Lowes where I got a black eye, also my pulse has been very low since removal and it’s hard to swallow. Removal has traumatized me.

[drtowfigh]

Suffocation after Removal

Sounds like a difficult Situation. Are you implying that the triple neurectomy directly caused suffocation? Have these been re-evaluated as panick attacks?

[Mesh]

Suffocation after Removal

Thank you for your reply Dr. Towfigh
I don’t know if the neurectomy
is the cause of it.
Wondering if you knew or heard of that? My pulse barely gets above 45 and before removal I could feel my heart race and now everything barely
pumps and flows. I would think a panic attack I would feel a racing heart and excitable, now it’s just the opposite.

[drtowfigh]

Suffocation after Removal

Hi Mesh,

Any updates on your situation?

[Mesh]

Suffocation after Removal

Thank you for checking in Dr. Towfigh

According to 4 specialists here in Seattle the inability to breathe correctly is the result of Petersens removal.
A combination of the neurectomies weaking the wall causing a severe prolapse and the “repair” he does, overlapping muscles so tight and reshaping the groin into a “funnel” pushing everything into the testicles and pelvic floor like a tube of toothpaste so the upper portion of my stomach does not have room to expand because it has shrunk because contents are now lower than before so when I inhale I can’t get a solid breathe or enjoy a simple yawn. I suffocate in some cases passing out. I only experienced this after removal I never had these issues before.
The inhale also pushes into those areas, I can feel intense pressure on the opposite side of repair and into the groin/penis/testicle. The nerves have lost function to innervate the iliac muscle that helps me use my lower back to inhale also. I have a short torso so I needed those nerves. The sensations are truly traumatizing.

In my opinion and my doctors mesh and nerve removal should only be done in an emergency situation not “if someone wants it out” or some discomfort. The removal did not benefit me, only added more serious problems and discomfort. Today another patient flies in to stay with me from Colorado and we will be sharing notes, he to is much worse and traumatized from the removal.

Thanks again for checking in. I will send people here if anyone has questions regarding hernias.

2 years of worse torture than mesh.

[drtowfigh]

Suffocation after Removal

Did you undergo laparoscopic triple neurectomy?

[Mesh]

Suffocation after Removal

Neurectomies were done during removal and you’re aware of how Kevin performs these.

[drtowfigh]

Suffocation after Removal

Ok
Interesting
In the open fashion, it is not typically a radical neurectomy as much as the laparoscopic neurectomy can be (some cut nerves all the way in the back)
I will share your symptoms with our international group of hernia surgeons it’s very important for more of us to be aware of these rare but debilitating complications.
Thanks for sharing.

[drtowfigh]

Suffocation after Removal

What was your original hernia repair? Ie, lap or open? What type of mesh?

[Mesh]

Suffocation after Removal

Open, right side prolene ,one piece, put in perfectly and should have left it like that.
My opinion.
Removal is BS and
neurectomies are in humane and cruel to do to anyone sexually active.

[drtowfigh]

Suffocation after Removal

Sorry, just to clarify: Prolene mesh or Prolene Hernia System (PHS) mesh?

It makes a difference based on where the nerve(s) were cut

[Mesh]

Suffocation after Removal

It was one flat piece.
Stitched in. Had the blue stripes against the clear.

What’s the difference?

[drtowfigh]

Suffocation after Removal

Both meshes have the blue stripe but the PHS has an anterior and posterior component, which is also known as a sandwich type mesh.

[Mesh]

Suffocation after Removal

No it was not sandwich.

[drtowfigh]

Suffocation after Removal

Well that’s just an onlay mesh removal
There should be no denervation risk to the iliacus.
Keep looking for other causes

[Mesh]

Suffocation after Removal

“Well that’s just an onlay mesh removal”

Using the word “Just” in this sentence is offensive. This is exactly what’s wrong with the medical community and exactly
why good people get tricked into life altering and threatening surgeries from believing statements like this from doctors. How could you downplay this procedure?
Have you had one? There are
3 people I talk to weekly who had this done to them who want to end their lives from this procedure, including myself.

[drtowfigh]

Suffocation after Removal

You are right. After I sent the response, I too felt that the word “just” would be misinterpreted and thereby may perhaps would offend you.

I meant it from a surgeon’s point of view: Mesh removal should not be taken lightly. It is for sure a complex procedure with risks and complications. However, of all the types of mesh removals, the onlay mesh placement is the least technically demanding to remove and neurectomy associated with it is similarly the most straightforward and limited.

I basically was expressing that I am more shocked by your story, because you have such severe symptoms after an onlay mesh removal than perhaps if you had a sublay or sandwich mesh removal with retroperitoneal neurectomy.

[marcello71]

Suffocation after Removal

This definitely scares me now since my lap placed mesh sits on top of both the genitofemoral & lateral cutaneous nerve branches with the ilioinguinal & iliohypogastric being further towards the surface…

If I have mesh removal(& neurectomies/neurolysis as I’m told is also necessary), Am I at risk of losing any motor function or having problems with my gait afterwards?(I had a really good gait too let me say, like a show dog or thoroughbred. I was one fine specimen before all this.)

Or are these all only sensory nerves..?

Btw I’m sry to hear what your going through ‘Mesh’. It sounds like ‘Master P’ doesn’t understand the full ramifications of trip neurectomies, if he didn’t tell you all this beforehand atleast.

[drtowfigh]

Suffocation after Removal

Yup, “Mesh” is doing an excellent job alerting others that there are risks with mesh removal and that it should not be taken lightly, and it should be reconsidered if the underlying pain or discomfort is not significant.

[mela414]

Suffocation after Removal

All this is scaring me. I am having surgery Thursday and am in so much pain that it can’t be done soon enough. All these mesh issues and concerns are giving me more anxiety.

[marcello71]

Suffocation after Removal

I think “Mesh” is a putz, don’t let it get to you or scare you mela. If “Mesh” was really suffocating(as he’s told me he was multiple times) then he wouldn’t be typing anymore.

Are any diaphragmatic nerves/muscles affected by ilioingiuinal/iliohypogastric/genitofemoral neurectomies as “Mesh” claims?

[Author]

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