Trying to Get A Hernia Diagnosis
My daughter, college student aged 21, is in terrible pain and was just diagnosed at Thomas Jefferson University Hospital in Philadelphia via Musculoskeletal Ultrasound by an Interventional Radiologist as having bilateral inguinal hernias. The exact report states ‘In the maximum area of tenderness and bulging at the level of the inguinal ligament is a fat-containing left inguinal hernia lateral to the inferior epigastric vessels which is present during standing and Valsalva maneuvers. The hernia reduces spontaneously in the supine position and with relief of Valsalva pressure and there are no loops of bowel within the hernia. Similarly, but slightly smaller in size, is a right inguinal hernia lateral to the interior epigastric vessels that is present during Valsalva maneuvers and standing and spontaneously reduces in the supine position and with release of Valsalva pressure.”
I figured I would have the surgery closer to home and the general surgeon, who came highly recommended, ordered a CT with oral and IV Contrast to confirm the diagnosis. He called with the negative findings saying there were no hernias and he would not do the surgery. He additionally stated that we shouldn’t permit any surgeon to operate on her and said he would recommend a Pain Management Specialist for her.
This surgeon is actually the 2nd General Surgeon in the past year that told us that ordered and looked at a CT and said there is nothing wrong and my daughter should either take pain meds or go to see a Pain Management Specialist.
I followed with a phone call to the Radiologist that performed the Ultra sound at the University Hospital again and she stated with complete certainty that my daughter has the hernias and that of course they wouldn’t show on a CT where she was laying down and having no abdominal pressure…that was in the report as stated above. Why would the surgeon trust the CT that is taken in a supine position when the results clearly stated the hernia wouldn’t appear?
In the meantime, my daughter is still soooo upset. If one more Dr referred her to a pain management specialist…..we finally have the definitive diagnosis and the surgeon doubts it again.
I totally trust the Radiologist and thank her for her definitive diagnosis. We are now following with and have an appointment with a General Surgeon back at Jefferson …which I should have done to begin with….of course I am kicking myself and feel guilty.
I have learned so much from reading Dr Towfigh’s information and articles that I know I can’t stop advocating for my daughter. I believe we are on the right track now. I just wish Tuesday’s appointment was here already.
The upset and frustration for the suffering patient AND the supporting family is enormous. I hope others can learn from my experience and I hope to learn from others. When you know you are doing the right thing, dont’t doubt yourself and don’t stop searching for the right answers.
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