Ben999
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Ben999 replied to the topic Pain free (again) after mesh removal in the forum Hernia Discussion 6 months, 1 week ago
One more thing I just remembered while reading through recent posts on here:
It seems my nerves have regenerated to a certain extent. Even during the “good period” immediately after the removal, the affected skin area was numb at best, which of course was still better than having pain there. Then, once the pain came back, it was a varying mix…[Read more]
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Ben999 replied to the topic Lichtenstein Repair Wrong Ways – Dr. Chen in the forum Hernia Discussion 6 months, 1 week ago
My case has a very poignant relation to this issue. During the preoperative talk it was said that I would have a Lichtenstein repair with a flat 2D mesh, illustrated by a corresponding graphic on the signed informed consent sheet.
However during the actual surgery an Ethicon UHS was used, which not only isn’t a flat mesh obviously but also is…[Read more]
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Ben999 started the topic Pain free (again) after mesh removal in the forum Hernia Discussion 6 months, 1 week ago
I’m posting an update as I recently stumbled across this forum again.
Some of you may remember me, I had an Ethicon UHS removed due to chronic pain (it was fused to my n. ilioinguinalis which was neurectomized) in 2019.
After the recovery from that removal I was almost back to normal in terms of pain (or rather lack thereof) and physical…[Read more]
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Ben999 replied to the topic Neuropathic pain after neurectomy in the forum Hernia Discussion 1 year, 8 months ago
My pain specialist is against any invasive procedures because he thinks it’s impossible to accurately and reliably locate the right nerve(s).
And at least for him that’s true.
Out of the six nerve blocks I got, three affected unintended nerves and one of them made me lose all sensation and motor function of the inner half of my leg for a day.
So I…[Read more] -
Ben999 replied to the topic Plug + Patch Removal (always a triple neurectomy?) in the forum Hernia Discussion 1 year, 8 months ago
Hello,
I’ve had a UHS removed which I would say is quite similar to a plug and patch in terms of removal, maybe even more difficult.
The first question, is triple neurectomy performed 100% of times?
No.
Some surgeon do it prophylactically but from what I’ve read there is no evidence to support that this is the best way to go.1.Can a surgeon…[Read more]
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Ben999 replied to the topic Neuropathic pain after neurectomy in the forum Hernia Discussion 1 year, 8 months ago
Dr. Towfigh, you mentioned that a neurectomy may be necessary.
Since I’ve tried pretty much everything else except for opioids, I think it should be considered.
And you said most neurosurgeons don’t have experience with peripheral nerves (in relation to hernia surgery).
But who does?
Hernia surgeons?
I have consulted two in my area and they didn’t…[Read more] -
Ben999 replied to the topic Hernia Repair + Orchiectomy + Orchiopexy in the forum Hernia Discussion 1 year, 8 months ago
Damn that sounds rough.
I feel for you.As far as I can tell, you only had the repair on the right side?
And the seroma/hematoma was so severe that it also affected the left testicle?
That sounds possible, but it doesn’t explain why you have no sensation at all down there, since your left side was mostly unaffected.I had a huge hematoma for two…[Read more]
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Ben999 replied to the topic best method for curing bilateral hernias and is nausea a hernia symptom? in the forum Hernia Discussion 1 year, 8 months ago
I agree that mesh is overused but it’s not the only possible cause of irreversible damage.
You should make sure your surgeon is a master of his chosen technique and especially that he handles nerves carefully!
Nerve damage leads to severe pain that is very hard to treat.That’s the situation I’m in now even though my mesh has been removed and…[Read more]
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Ben999 replied to the topic Neuropathic pain after neurectomy in the forum Hernia Discussion 1 year, 8 months ago
Another update:
I’m now taking Lyrica and Amitryptiline at the final dosage and I got the 6th injection. Unfortunately, judging by my pain documentation sheet and subjective estimate, the pain is actually getting worse again.
I think it might be because my body is getting used to the medication.
The injections only bring very short-term relief,…[Read more] -
Ben999 replied to the topic Nerve Blocks in the forum Hernia Discussion 1 year, 9 months ago
I’m getting regular nerve blocks from a pain specialist right now. He advertises MRI-guided blocks on his website in cases where they’re needed, but I guess at least in my case, he doesn’t need the guidance. He just feels around for certain anatomical markers and then he hits the spot!
One time out of many, he must have missed slightly and my…[Read more] -
Ben999 replied to the topic Dr. Ramshaw in the forum Hernia Discussion 1 year, 9 months ago
Sueing a surgeon in that scenario seems pretty scummy, unless there’s evidene that he did indeed commit a major error.
I’m actually in that situation, where I had mesh removed by a specialist and the pain is now coming back, but I would never think of sueing him, as he legitimately did the best he could.
But then again I don’t know that patient’s story.
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Ben999 replied to the topic Problems with robotic surgery in the forum Hernia Discussion 1 year, 9 months ago
From my understanding one of the big advantages of lap/robotic is that the chance of nerve damage in the groin is tiny compared to open, since these nerves lie anterior to the abdominal wall. And damage to these nerves is one of the main reasons for chronic pain after hernia surgery.
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Ben999 replied to the topic Neuropathic pain after neurectomy in the forum Hernia Discussion 1 year, 9 months ago
Here’s an update.
I’ve had three nerve blocks at the pain clinic. They took away all symptoms of neuralgia for about a day each, however it seems like with each nerve block the symptom-free period got a little longer. So my doctor wants to do another series of 6.
I was slightly disappointed because I hoped he would suggest a more causal…[Read more]
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Ben999 and
Lucas S are now friends 1 year, 9 months ago
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Ben999 replied to the topic Just found hernia number 12 ..I am Swiss cheese! in the forum Hernia Discussion 1 year, 9 months ago
I’m not in the double digit gang, I thought my 3 hernias at age 19 were impressive but I guess not.
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Ben999 replied to the topic Dr. Ulrike Muschaweck – the latest in the forum Hernia Discussion 1 year, 9 months ago
I’m not a doctor but I got IONR as a patient from Dr. Conze, who is/was a close colleague of Dr. Muschaweck.
It got rid of the pain for about 1 to 1.5 years but the problem is that nerves regrow, which can lead to recurring pain.It’s still better than before when the mesh was fused to the nerve but it’s not a permanent fix.
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Ben999 replied to the topic Best surgeons for mesh removal? in the forum Hernia Discussion 1 year, 10 months ago
You mean what patient or what surgeon?
The patient is Lucas.
I’m not sure I can name the surgeon for legal reasons as I sued him and there’s a case going on right now.
I guess I can say that his clinic is near Coburg, Germany -
Ben999 replied to the topic Best surgeons for mesh removal? in the forum Hernia Discussion 1 year, 10 months ago
I’m wondering if you suffered the exact same fate I did. There was a young guy with your name who got surgery the same day I did, by the psychopath who crippled me. Country and time of surgery fit.
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Ben999 replied to the topic I'm so furious and depressed … I can't understand why doctors use mesh! in the forum Hernia Discussion 1 year, 11 months ago
As someone who suffers from this myself, the story about your fingertip was really uplifting.
Obviously it’s not the same as a mesh removal with possible neurectomy but a similar situation. Noone really talks about how long it takes to fully heal from a hernia surgery, much less a mesh removal. It’s just about how long it takes to get back to work…[Read more] -
Ben999 replied to the topic Neuropathic pain after neurectomy in the forum Hernia Discussion 2 years ago
Yes, an Ethicon UHS, it’s placed openly but with connected posterior and anterior parts
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