Momof4
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Momof4 replied to the topic New article by Dr. David Chen, President of the Americas Hernia Society in the forum Hernia Discussion 1 year, 4 months ago
As always, thanks Good Intentions for keeping us up to date on all things hernia. I am impressed with your research skills! You make it easy for all of us to read what’s new and relevant and I truly appreciate your efforts!
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Momof4 replied to the topic Which surgeon would you go with? in the forum Hernia Discussion 1 year, 4 months ago
Thanks @pinto! I know Dr. Towfigh and her team have done research and published on the topic of allergy testing for mesh allergies. I don’t think the tests are very reliable and have a high false negative rate. That being said, I had allergy testing before having polypropylene removed and I had a severe skin reaction. I also reacted to the h…[Read more]
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Momof4 replied to the topic Which surgeon would you go with? in the forum Hernia Discussion 1 year, 4 months ago
Jon,
I hope you find the right surgeon for your situation. It is a very complex issue for sure. I’m wondering why you had a mesh removal recently and didn’t have the hernia repaired then. Was it not present at the time of removal? If you are pleased with Dr. Chen, why are you looking for another surgeon? If you had a problem with mesh the fir…[Read more] -
Momof4 replied to the topic HerniaTalk LIVE Q&A: Mesh Removal Options 06/15/21 in the forum Hernia Discussion 1 year, 7 months ago
Great session, as usual! Thanks 😊🙏
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Momof4 replied to the topic Just found hernia number 12 ..I am Swiss cheese! in the forum Hernia Discussion 1 year, 10 months ago
The not getting upset part is hard!! When I am in so much pain and don’t have a plan, it’s a struggle to keep going. I try to be positive and move forward and am fortunate to have a good support system! Dr. Martindale sounds like he will do his best to get you as healthy as possible! Best wishes and keep us up to date! Maybe someone can ben…[Read more]
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Momof4 replied to the topic Your help needed for patient advisory committee! in the forum Hernia Discussion 1 year, 10 months ago
The collaborative is now the Abdominal Core Health Quality Collaborative, ACHQC. There is no official form associated. The patient advocacy committee is discussing several topics for presentation at the Summit, which has been made totally virtual and spread out over several months. One of the topics to be discussed in June, by the Patient Advocacy…[Read more]
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Momof4 started the topic Your help needed for patient advisory committee! in the forum Hernia Discussion 1 year, 10 months ago
Hello all! I am working on a patient advisory group to improve hernia care by including patient perspectives and expectations. I would love to hear from everyone about how your expectations for hernia surgery differed from the reality of your hernia repair. Also, what factors a patient considers when deciding to have surgery and if afterward, the…[Read more]
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Momof4 replied to the topic Just found hernia number 12 ..I am Swiss cheese! in the forum Hernia Discussion 1 year, 10 months ago
Mamadunlop,
Oh no, I was hoping no news is good news. Hate to hear this. Dr. Martindale was a guest on HerniaTalk Live this week. It was a great session and he seems very dedicated to helping patients with comples hernia issues, like yours. Why are all the good doctors on the West Coast?!? Ajm asks a good question about whether you have been…[Read more] -
Alex P and
Momof4 are now friends 2 years ago
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Momof4 replied to the topic HerniaTalk **LIVE** Q&A with Dr Towfigh 11/10/2020 in the forum Hernia Discussion 2 years, 2 months ago
Fabulous as usual and on your birthday! What a gift HerniaTalk Live is to us. We are grateful for your help and the help of all your colleagues. Thanks to you we have Hope! 🥰
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Momof4 replied to the topic 16% pain across the board – open mesh hernia repair 2020 paper in the forum Hernia Discussion 2 years, 3 months ago
Addressing your statement that there are probably some situations that won’t see improvement without intervention, someone having a reaction to the mesh is one of those situations. Your body is in a constant state of inflammation and, in my case, debilitating pain! I am happy for those that get resolution without intervention. Every subsequent s…[Read more]
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Momof4 replied to the topic HerniaTalk **LIVE** Q&A with Dr Leo Treyzon 09/29/2020 in the forum Hernia Discussion 2 years, 3 months ago
Once again, a very informative talk with 2 very knowledgeable experts! Thanks to Dr. Towfigh and Dr. Treyzon for taking time to help those of us who are suffering and looking for the best help. Your kindness shows that you truly care about your patients.
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Momof4 replied to the topic HerniaTalk **LIVE** Q&A with Dr. Jan Willem Cohen Tervaert 09/15/2020 in the forum Hernia Discussion 2 years, 4 months ago
It really was a fantastic and informative session, thank you! I really learned a lot pertaining to my situation and some of it helps me to make sense out of everything that is going on. I wish more doctors were on board! It really means a lot when a doctor really listens and believes what the patient is saying. We couldn’t make this stuff up, i…[Read more]
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Momof4 replied to the topic Re-absorbable meshes and chronic pain in the forum Hernia Discussion 2 years, 5 months ago
And thank you to Dr Szotek for the contribution and useful information!
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Momof4 replied to the topic Re-absorbable meshes and chronic pain in the forum Hernia Discussion 2 years, 5 months ago
The informative tele-health appointment sounds like a good idea, it can’t hurt! Get as much information as possible before making a decision on surgery and mesh v non-mesh. Your quality of life may depend on it. Best wishes!
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Momof4 replied to the topic Incisional hernia suggestions and concerns in the forum Hernia Discussion 2 years, 5 months ago
I disagree with the statement that Polypropelene can’t be rejected! You can have an allergic reaction and/or foreign body response to mesh. I know because it has happened to me with 2 different materials, both synthetic. It has caused lots of suffering and health problems (still is)! Dr. Towfigh has offered her opinion and advice concerning such i…[Read more]
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Momof4 replied to the topic Best surgeons for mesh removal? in the forum Hernia Discussion 2 years, 5 months ago
Yes, I agree with the comment about cutting nerves. I had a Lap triple neurectomy and asked specifically if there were any side effects in addition to the numbness and was told none. Doctors and patients alike now know that is not the case. There is some motor component to those nerves, especially when the neurectomy is performed laparoscopically.…[Read more]
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Momof4 posted a new activity comment 2 years, 7 months ago
I just saw this. Thank you for the reply to my questions about Dr. Ramshaw. I watched the live session with Dr. Ramshaw and thought his protocols sound like a good plan. One thing that has always perplexed me and my husband is the lack of a plan of care or intervention after these major surgeries I’ve had. We have often asked if there is a…[Read more]
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Momof4 replied to the topic Mesh removal and neurectomy in the forum Hernia Discussion 2 years, 7 months ago
I know that a triple neurectomy causes laxity in abdominal wall. I was told no side effects besides sensory before I had it but told otherwise from Dr. Towfigh after the fact. I have bulging in the area.
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Momof4 replied to the topic HerniaTalk **LIVE** Q&A with Dr Bruce Ramshaw this Sunday 5/3/2020 in the forum Hernia Discussion 2 years, 8 months ago
I would really love to hear more about Dr. Ramshaw’s pre-hab and rehab protocols. I would do everything I can to optimize my chance for a successful removal and
non- mesh repair! Any chance you have this info or any way to get it? Thank you for your time on HerniaTalk Live! I’ve enjoyed the discussions.-
Hi, I am a previous patient of Dr. Ramshaw. I had a mesh implant for five years. Working was almost impossible because of the constant pain. Dr. Ramshaw was terrific. I made two trips to Tennessee. The first was an evaluation and outline of his protocols. The second trip was six months later. He removed my mesh and repaired the hernia. I stayed…[Read more]
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I just saw this. Thank you for the reply to my questions about Dr. Ramshaw. I watched the live session with Dr. Ramshaw and thought his protocols sound like a good plan. One thing that has always perplexed me and my husband is the lack of a plan of care or intervention after these major surgeries I’ve had. We have often asked if there is a…[Read more]
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