Momof4

Once again, a very informative talk with 2 very knowledgeable experts! Thanks to Dr. Towfigh and Dr. Treyzon for taking time to help those of us who are suffering and looking for the best help. Your kindness shows that you truly care about your patients.

It really was a fantastic and informative session, thank you! I really learned a lot pertaining to my situation and some of it helps me to make sense out of everything that is going on. I wish more doctors were on board! It really means a lot when a doctor really listens and believes what the patient is saying. We couldn’t make this stuff up, i…[Read more]

And thank you to Dr Szotek for the contribution and useful information!

The informative tele-health appointment sounds like a good idea, it can’t hurt! Get as much information as possible before making a decision on surgery and mesh v non-mesh. Your quality of life may depend on it. Best wishes!

I disagree with the statement that Polypropelene can’t be rejected! You can have an allergic reaction and/or foreign body response to mesh. I know because it has happened to me with 2 different materials, both synthetic. It has caused lots of suffering and health problems (still is)! Dr. Towfigh has offered her opinion and advice concerning such i…[Read more]

Yes, I agree with the comment about cutting nerves. I had a Lap triple neurectomy and asked specifically if there were any side effects in addition to the numbness and was told none. Doctors and patients alike now know that is not the case. There is some motor component to those nerves, especially when the neurectomy is performed laparoscopically.…[Read more]

I know that a triple neurectomy causes laxity in abdominal wall. I was told no side effects besides sensory before I had it but told otherwise from Dr. Towfigh after the fact. I have bulging in the area.

@drtowfigh, Thanks for the interesting session. Shouldice Hospital wouldn’t touch me with a 10 ft pole!! So, how do we get some of those stainless steel sutures?? No inflammatory response sounds great!! Thank you for keeping hernia patients educated.

@julian
Any way you can be evaluated by Dr. Towfigh? If anyone can help you, she can (speaking from experience!).

Now the posts are up to 13 pages. Anyone else see this?

Julian, so sorry to hear of your continued suffering. I hope you find answers. Don’t give up! #ItsNotJustAHernia it’s our lives! I pray that you find strength as you continue searching for answers.

@drtowfigh and @drbrown Thank you so much for the very informative HerniaTalk Live session tonight! I truly appreciate your time and expert opinions. Your passion for all things Hernia shows and we, the patients, are grateful. Stay safe and well. God bless you!

Thanks for always looking for ways to help patients with hernias and/or mesh problems. As you know, We can use all the help we can get! I would love to contribute if appropriate. Stay well!

I was tested twice, once while implanted with polypropelene mesh and once 6 months after removal, looking for a way to repair multiple recurrent hernias. The first time I had severe skin reactions to polypropelene and hybrid with some polypropelene. The second time, with a different allergist and with no mesh implanted, I didn’t react to the p…[Read more]

Just wanted to chime in since I’m one of the 10-15% (I think that number may truly be higher). I guess the reason that number seems so large to those of us suffering is because when there is a complication it is a life changing, a lot of times debilitating, complication. I’m hoping moving forward there are things that can be done to make that num…[Read more]

Alephy,
The statement on the UK site is false! While surgeon technique and skill definitely contribute to success it certainly isn’t the only factor when mesh causes problems or fails. I know Dr. Towfigh has said the percentage is small, but some people react to the mesh itself. You can have an allergic reaction or foreign body response (which m…[Read more]

@lkdivers,
Since you are only three months out, hopefully this pain will resolve. I don’t think any long term pain from hernia repairs should be part of the deal or the new normal. Keep seeking advice and help. I’m hopeful there is a cure! Best wishes