Momof4

The not getting upset part is hard!! When I am in so much pain and don’t have a plan, it’s a struggle to keep going. I try to be positive and move forward and am fortunate to have a good support system! Dr. Martindale sounds like he will do his best to get you as healthy as possible! Best wishes and keep us up to date! Maybe someone can ben…[Read more]

The collaborative is now the Abdominal Core Health Quality Collaborative, ACHQC. There is no official form associated. The patient advocacy committee is discussing several topics for presentation at the Summit, which has been made totally virtual and spread out over several months. One of the topics to be discussed in June, by the Patient Advocacy…[Read more]

Mamadunlop,
Oh no, I was hoping no news is good news. Hate to hear this. Dr. Martindale was a guest on HerniaTalk Live this week. It was a great session and he seems very dedicated to helping patients with comples hernia issues, like yours. Why are all the good doctors on the West Coast?!? Ajm asks a good question about whether you have been…[Read more]

Fabulous as usual and on your birthday! What a gift HerniaTalk Live is to us. We are grateful for your help and the help of all your colleagues. Thanks to you we have Hope! 🥰

Addressing your statement that there are probably some situations that won’t see improvement without intervention, someone having a reaction to the mesh is one of those situations. Your body is in a constant state of inflammation and, in my case, debilitating pain! I am happy for those that get resolution without intervention. Every subsequent s…[Read more]

Once again, a very informative talk with 2 very knowledgeable experts! Thanks to Dr. Towfigh and Dr. Treyzon for taking time to help those of us who are suffering and looking for the best help. Your kindness shows that you truly care about your patients.

It really was a fantastic and informative session, thank you! I really learned a lot pertaining to my situation and some of it helps me to make sense out of everything that is going on. I wish more doctors were on board! It really means a lot when a doctor really listens and believes what the patient is saying. We couldn’t make this stuff up, i…[Read more]

And thank you to Dr Szotek for the contribution and useful information!

The informative tele-health appointment sounds like a good idea, it can’t hurt! Get as much information as possible before making a decision on surgery and mesh v non-mesh. Your quality of life may depend on it. Best wishes!

I disagree with the statement that Polypropelene can’t be rejected! You can have an allergic reaction and/or foreign body response to mesh. I know because it has happened to me with 2 different materials, both synthetic. It has caused lots of suffering and health problems (still is)! Dr. Towfigh has offered her opinion and advice concerning such i…[Read more]

Yes, I agree with the comment about cutting nerves. I had a Lap triple neurectomy and asked specifically if there were any side effects in addition to the numbness and was told none. Doctors and patients alike now know that is not the case. There is some motor component to those nerves, especially when the neurectomy is performed laparoscopically.…[Read more]

I know that a triple neurectomy causes laxity in abdominal wall. I was told no side effects besides sensory before I had it but told otherwise from Dr. Towfigh after the fact. I have bulging in the area.

@julian
Any way you can be evaluated by Dr. Towfigh? If anyone can help you, she can (speaking from experience!).

Now the posts are up to 13 pages. Anyone else see this?

Julian, so sorry to hear of your continued suffering. I hope you find answers. Don’t give up! #ItsNotJustAHernia it’s our lives! I pray that you find strength as you continue searching for answers.