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patientsrising

Member
February 8, 2025 at 11:25 am in reply to: Patients Response – to the AHS – The Left Behind

Hi all – just an update that we are happy to share that this important program is already receiving great notice with over 200 views across two platforms the past 48hrs. While those numbers may appear small by influencer standards they are significant given the specificity of the audience and seriousness of the content. We are especially appreciative of all the traction coming from this community as we are hearing from others affected by these serious problems in abdominal wall/hernia surgery, but also from the partners, caregivers, and other industry personnel seeing these all too common failures occurring as the program reveals is broadly known by the societies themselves. We are also aware of other doctors adjacent becoming more informed of these matters which is the only way needed change can occur.

But to answer a few questions raised and more on the $50,000 monetary campaign we are pushing forth below. As the program summarizes the goals are multifold:

1.) We aim to raise a louder patient voice for those left harmed or still fending for care with complications their surgeon has either left unresolved, disregarded or that others have determined to be incredibly challenging to correct. Even in instances known by many we’ve seen on this forum and others that have been left suffering with issues defined as uncorrectable or too dangerous to address.

2.) We plan to organize, raise widespread attention, and present select cases while being adjacent the societal meetings with the “Faces and Cases” of the far too many patients whom surgeons are leaving behind.

3.) We are going to do our damndest to call attention to the abandonment, ghosting, gaslighting and other disconcerting responses that should have no place in medical care – and are going to do so by shining a bright light and documentary to instances where they are senselessly occurring as this presentation reveals is happening even in “expert hands.” But also by celebrating those doctors trying to bring about change by continuing to help those in challenging circumstances and whom are trying to hold their peers to their better tenets and oaths.

Finally, the $50,000 innovation campaign is put forth to spread the word and hope for solutions to patients left rendered in states of extreme tension, constriction, etc… resulting from over correction or procedures done too aggressively as the program intricately summarizes. As unfortunate as it may be, sometimes the only way to really move the needle with a busy field of doctors is to put some additional resources for collaborative thinking and inspirational focus. We have many ideas for those wishing to solve issues, not run from them. So please let any doctor you feel feel may want to help or even contribute new thinking know about this effort. We need everyone to work together on both sides, but we as patients need to be far better organized and united in cause.

We will have more in the coming days. We are happy to report that many have already said that anyone who has had a surgery go awry, or is considering abdominal wall/hernia surgery in general could truly benefit from this program is what fuels our beliefs that all things are possible if good people stay committed to change.