[Pete]

Good intentions – please re-read my initial post describing my symptoms, could all of my symptoms be related to the mesh and possible groin injury last August. Dr. Earle thought upon examination that I have several recurring hernias bilateral despite nothing showing on image. Does this in fact mean the mesh has failed also. I am in agony with pain in scrotum, penis, hips, abdomen, legs, feet, back, rectum. It seems everything has gotten worse and traveled over the last 9 months straight. Mostly pain is worse on left side, and when I squeeze my pelvic floor muscles it feels like something binding up on the left inguinal, left hip, left abdomen within the area of the mesh. I have had so many varying unconfirmed diagnosis, and I must make a decision on this surgery soon. All my muscles have spasms tight in response to this pain everywhere, and I fear I am becoming sensitized due to unmanaged pain also. Could mesh do all this in these other areas I have lost much feeling in my feet also, yet EMG test showed normal nerve function. How does all this relate. Pain is mainly in the groin, genitals, abdomen directly in mesh areas.

[Pete]

I am faced with making a decision about mesh removal now and leaving me exposed to future hernias as only stitches would be used to sew me back up apparently. Much of my pain has been hard to figure out, as I have had other diagnosisis floated from prostatitis, pudendal neuralgia, CRPS yet not confirmed. I had a Pudendal nerve block that went bad where an intern left me screaming in agony on the table as she hit bone and other nerves I think damaging me further. My pain began after the groin injury last August 2017 I thought at 1st it just involved by left scrotum, left inguinal area and penis and rectum. Now it is in scrotum, penis, abdomen, legs, feet, back and ringing in my ears. My muscles spasm so bad and uncontrollable. I am getting burning skin feeling in arms now. I have not been able to tolerate the nerve drugs they tried me on, so no real pain management with this either. Just not sure how this has spiraled out of control. Could this have all started by involving the left hernia and mesh. Has anyone else had symptoms manifesting itself like this?

[Pete]

The groin injury set this whole thing off, yet prior there had been shooting pains occasionally in the abdomen and tightness there and in the rectum. It could be that something was started involving the mesh or system, and the injury was the final straw pulling tissue near the left inguinal area. I had seen 2 local surgeons who dismissed the mesh or recurring hernia based on radiologist report. Yet I am aware that small hernias as well as mesh does not always show on image, and the symptoms I am having feel like the worst hernia times 100. One surgeon noticed the mesh may have contracted but attributed the pain to other pain drivers. The other symptoms that I originally described, whether caused by mesh rejection, chronic pain unmanaged, or sensitization at this point, I am unclear.

As far as pain management, I have been tried on gabepentin, lyrica, amytriptaline muscle relaxants achieved no pain reduction and had to go off due to horrible side effects that affect me giving a hyperadrenaline response and other not so good things.

I reached Dr. David Earle as I was referred to him by another good friend who is a doctor and recommended I speak with him. I have since sent radiology reports and mailed physical disks of all image studies to his office.

I hope others can comment on my post as more information I hear, will help me through this painful medical crisis that has gone on too long.