Dr. Wright, Triple Neurectomies, K. Petersen
First, I am sharing my opinion and personal experience, I am obviously not a doctor but a mesh removal and triple neurectomy patient.
Dr Wright an appropriate name because he is right. An amazing and straight forward diagnosis with the utmost time and professionalism I have ever witnessed. Truly a great man thank you Dr. Towfigh for the recommendation.
Dr. Wright is the third doctor not including a neurologist to recognize the importance of nerve preservation and to validate the motor function of the ilioinguinal, iliohypoghastric and genitofemerol nerves (spelling) and that they will never grow back. ( See OP report below. ) But why are we feeling worse? (answer below from removal Dr.).
Nerve removal in my opinion should be outlawed it is paralysis. It severely affected stomach strength, genital support and function, digestion and so many issues of pain and alteration, it weakened my stomach and the nerve to the back causing serious pain and weakness, severe bloody ejaculation which would only be brought on by a painful irritating erection…. it is wrong. Wrong in my opinion to ever market this procedure with laxity and unrealistic claims, it’s misleading. You/I can not innervate the lower abdominals to strengthen them with out those nerves, never. I can not flex those muscles ever or lift my testicles or support my penis properly. The doctor that performed my removal said they were only sensory nerves and that they would grow back (See Below email from removal Dr.) That was the discussion he had with me on the topic 10 seconds long. This was based on his boasting of 20 years of removal experience. I am/ we are triple neurectomy patients and if I knew it was this bad I would have opted to keep the mesh in then to lose the use of my genitals, comromise my balance, strength and be this lopsided and in this much burning pain, with major organ prolapse bladder and prostate infections to boot. The damage inside my body is undescribable. I was so much healthier before this surgery. There is a serious trade off.
I talk to 3 removal patients weekly and we are all suffering most of the same symptoms. It is disturbing. The latest removal patient I met wrote this and it describes a lot of the how we feel.
I wonder if the more we share the more doctors and patients will start listening to the ones who have experienced a removal with neurectomies. I wonder. Maybe itâ€™s time to re write the text books and to listen to the patients. Go back to the drawing board. Unless you have had a triple neurectomy I don’t think you should be talking about it nor selling the idea of one. Maybe itâ€™s time to tell the truth. Dr Towfigh you were right. No one knows what happens with a neurectomy? Thatâ€™s why I personally feel we should listen closely.
I share this in hopes people will hear the patient and learn, it can be easy to get swayed into something worse if you walk into the wrong office. I share this here because I feel the doctors on this site tell it like it is and are trustworthy and have a larger audience. I am not a fan of any surgery or implant, I am in a unfortunate situation from listening to the wrong doctors and for getting on the internet and reading a website that inacccurately describes the reality of mesh and nerve removal and claims amazing results from it. I have nothing to gain or hide I just want let people know. Thank you for this forum and be careful out there. God bless.
From my newest neurectomy friend:
Since my surgeries which is 4 todate over 2 yrs I have been studying and researching the groin area so muscles,nerves and the skeletal structures. This was all brought about as the removal and division of nerves has not been without its problems, as anybody who has had a mesh removal or is planning to have one, understands that alone is a major operation as the surgeon has to cut through the abdominal wall/muscles and the peal off the mesh leaving the muscle wall stripped and raw, this alone will take months to recover from and only time, anti inflammatories and physio will sort this.
The nerve division itself is something different as with any nerve they stem from the spinal cord out into branches, now when you have the nerve cut no one tell the spinal cord that a particular branch is cut and so it will keep firing, hence the pain. Surgeons will normally burry the nerve ending into fat which is not as conductive so in theory pain should be less but this isn’t always the case. What you don’t read and what you don’t get told is that lucky people will be perfectly fine with nerve division but others won’t be. This is due to a four factors that combine to almost create a perfect storm, the first is the fact the nerves that are cut are still firing so the impulse from the cut nerve is returning a lot quicker back to the spinal cord as the nerves shorter, which in turn forms a back up or overload at the branch connection to the spinal cord which causes pain, for this it’s wise to seek a pyhsio who can work on opening the gaps in the vertebra and has a tens machine which they can work around the l2 and l3 sections of your back.
The next problems is that the branches of the nerves which are higher up than the division also become overloaded so you now have an increased or hypersensitive of the bowel, bladder or genitalia. This problem is also linked to the third problem of the actual end of the cut nerve, due to the trauma of the cut nerve our bodies reaction is to supply the area with sodium which is highly conductive thus making the pain worse, the added sodium in the area means that areas of the body which rely on sodium such as the bowel and bladder to keep a healthy ph balance now suffer causing bladder like infections and a stomach which is all over the place. Their is away you can combat both of these problems, the first being lidocaine patches 5mg which work at dispersion the sodium build up and making the cut nerves less conductive, the seconds a home remedy of adding half a teaspoon of
Bicorbonate of soda to a glass of water for a week to reset the ph levels in your stomach and bladder as they will have become acidic.
And finally the 4th problem is the actual trauma of the surgery and scar tissue, which will be significant and only time and help from a physio who has an ultrasound machine will help, if the scaring is chronic and serve a direct steroid injection into this will speed the process up.
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