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  • Minimalist open repair & consequences

    Posted by Côme on December 4, 2024 at 6:47 pm

    Hello,

    This post is an update from my previous post ( https://herniatalk.com/forums/topic/mesh-less-repair-after-8-month-disaster/ ).

    Long story short : had very small hernia repaired (fatty tissue only) on the right side by Dr. Conze in Germany. Experienced lof ot pain after the surgery and recovery was super tough. 1 month after the surgery, starting to experience heavy digestive issues. Since then, they became permanent with some moments worse than other but generally bad (daily belly pain, bloating, etc.).

    I finally got an MRI without contrast : it showed nothing except rectal inflammation with moderate wall tickening (that wasn’t there before). They didn’t even see an inflammation on the right side, where most of my symptoms are and where the hernia was repaired. This doesn’t make any sense because I feel the inflammation, litteraly. But go figure…

    For the gastro-enterologist, there is nothing else to find just some inflammation here and there. For him :

    – The surgery acted as a metabolical stress trigger that induced Crohn disease.

    I had many blood test in the past, never once there was elevated C-reactive protein or anything.

    So basically I came for a small painless hernia and got out with an auto-immune lifelong and life-threatening disease, making my daily life a pain.

    Boys, before getting any surgery, think twice, because they have no idea what they are doing or what it can trigger.

    Medecine is more like cooking : put stuffs, do stuffs and hope for the best… unless it’s the worse.

    Côme replied 1 day, 18 hours ago 3 Members · 4 Replies
  • 4 Replies
  • John Fortem

    Member
    December 11, 2024 at 5:24 am

    Hello! I read the long story version and commented there as well. I’m glad to see you finally got the MRI without contrast, like you wanted.

    No surgery is without its risks, unfortunately. Is this the same technique as used by Dr. Muschweck?

    Metabolic stress can indeed play a role in triggering or exacerbating Crohn’s disease. Metabolic stress refers to the body’s response to various stressors that disrupt normal metabolic processes. This can include factors like infection, inflammation, and bacterial imbalances in the gut.

    Research suggests that metabolic stress can reduce the function of the epithelial barrier in the intestines, which is crucial for maintaining a healthy gut environment. When this barrier is compromised, it can lead to increased inflammation and contribute to the development or worsening of inflammatory bowel diseases like Crohn’s disease.

    Additionally, stress hormones such as cortisol and adrenaline, released during periods of stress, can negatively impact the digestive system, causing inflammation and irritation in the intestines.

    Are you an athlete by any chance? I know an active football player who has Crohn’s disease. Crohn’s disease itself is not typically life-threatening with proper medical treatment and lifestyle strategies. However, it can lead to serious, potentially life-threatening complications if not managed effectively.

    I’m always skeptical about techniques that have terms like “minimalist” or “minimally invasive” in their name. I initially wanted to have my own hernia repaired using a laparoscopic approach, but could not find anyone who would do it without a mesh implant.

    I have seen a certain Dr. Kang here cited as saying something like, it’s better to have a failed tissue repair than a failed mesh repair. That catches very accurately the thought that I was guided by. I’m all about conservative and cautious approach to things that can have major and irreversible impact, in every aspect of life. But in modern times, I think we are often too cautious and we set our standards very high, and yet we still suffer. As always, the key is to find the right balance. Having no cut doesn’t count as surgery.

    In the end, I accepted traditional, open surgery in my case. Like in the old days. No minimalism here. I was cut open wide and proper. But I found a very experienced and understanding surgeon. He is trained in the Shouldice technique. But he uses a modified Shouldice technique of his own. He’s like Bruce Lee! Meaning, the man is fluid and adaptive. Like we all should aim to be. He does it without a mesh. But he also sometimes uses a mesh. He does it with absorbable sutures. But he also sometimes uses permanent sutures. He told me the same thing your surgeon did, he would make the decision about what materials to use or not to use once he starts operating on me. It’s called intraoperative decision-making.

    But my hernia was a proper hernia, not just a fatty tissue hernia. In fact, I have lived with it for about 9 years, and it started aiming for my scrotum. My brother had the same type of hernia, but his already reached the scrotum before he went in for surgery. That took 8 years I think, but he was about 2 years ahead of me, before I also developed a hernia. So he had his for 10 years in total I think. We both had ours fixed by Dr. Koch in Germany and have been hernia free for 5 and 6 years respectively.

    I’m really sorry your own experience with hernia repair turned out so badly, despite being so small. What I think happened is your wound didn’t heal properly. Because you complained about having pain immediately after the surgery, and you continued to be in pain as weeks and months went by. That doesn’t sound normal to me. Perhaps you were allergic to the suture that was used, or the suture was not absorbed fully and properly by the body. Perhaps a permanent suture would have had a better outcome. Perhaps making the cut wider and deeper would have promoted faster healing and with less tension. Who knows at this point? There are a lot of things that can go wrong in a surgery, and every patient is different. For what it’s worth, I wish you a continued and full recovery.

    • Côme

      Member
      December 16, 2024 at 11:34 pm

      Hello,

      yes, it’s supposed to be the same method as Muschaweck.

      It hasn’t get better. I had another “flaring / crising” 8 days ago.

      Since then I’m trying the carnivore diet and I have quite a lot of reliefs already.

      I’m just not ready to accept all their immune suppressor, <srpx-bugfix></srpx-bugfix>corticosteroid, etc., that will just fuck up my immune system.

      But if it was to be done again, I wouldn’t do the surgery. This isn’t only about luck, it’s truly that “nobody knows what the fuck they are doing or can trigger”.

      Of course the surgeon is helpless and has now disappeared…

  • Oceanic

    Member
    December 10, 2024 at 3:36 pm

    You just got really unlucky I think, no fault of the surgeon

    This forum really has been destroyed by the so called upgrades

    • John Fortem

      Member
      December 11, 2024 at 5:23 am

      When was it upgraded? What in particular is wrong with it?

      I joined in 2018 and I seem to remember that it was better before. I think it was running on vBulletin and now it runs on WordPress. I was absent for about 4 years, and I logged back in just this week after resetting my password. I have noticed a few problems caused by the migration. For instance, clicking on certain old links returns a zero, a plain and simple zero on a blank page. I think it was a notification link in this case, so viewing content I was notified about 4 years ago is not possible. But at least they didn’t nuke and pave, and that’s honorable.

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