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ProPublica Patient Safety Community
Just passing this along because it may potentially be helpful to other patients, and for those who want to advocate within the medical world.
ProPublica is a non-profit investigative journalism organization that occasionally focuses their investigative capabilities on the US health care system and health industry. They have a Facebook group titled “Patient Safety Community” where people share various experiences or knowledge, and hernia / mesh is a topic of discussion on there:
https://www.facebook.com/groups/patientharm/
And a few related articles from propublica:
https://www.propublica.org/atpropublica/behind-the-headline-kristen-davis
https://www.propublica.org/series/patient-safety
Unfortunately it is only on Facebook, but for those who are Facebook users it may be a helpful resource or place to share knowledge.
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