Forum Replies Created

  • Jjpugsley

    Member
    September 27, 2018 at 2:52 am in reply to: At a loss – no diagnosis

    We got back the written report on the MRI. The technician or dr (not sure which) said everything looked “normal”. I still feel in my gut ( no pun intended) that this is it. I’m hoping to get someone more familiar with female occult hernias to give a second opinion. I have the MRI on CD. It really does seem to be the best fit: endometriosis, cysts, appendicitis, Meckel’s diverticulitis, etc all ruled out! Will also be seeing Sholdice, but on this forum it has been implied that they won’t do occult hernias.
    My poor daughter is losing all hope and now her family dr has taken her off any pain killers or naproxen as she is worried about long term damage.
    So no diagnosis, pain in the exact same area no meds. Unable to stand or walk for any long periods. Definitely no lifting possible.

  • Jjpugsley

    Member
    August 8, 2018 at 12:31 pm in reply to: At a loss – no diagnosis

    Update,
    Unable to accept that there was nothing wrong, and with my daughters symptoms not only persisting but increasing, I sent my surgeon Dr Towfigh’ 2014 JAMA article and some newspaper articles on occult hernias. Luckily he had an open mind and called her in for re-examination. He still couldn’t feel anything but admitted, even during the diagnostic laparoscopy, that he was not looking for a hernia. He also said that, with the new information in mind, that her pain was exactly where an inguinal hernia would be. So he went ahead and ordered an MRI!
    Unfortunately we’ve had to wait months because manu of the radiologists “ don’t believe this is an acceptable use of the MRI’s time” so they won’t schedule it. Only 1 hospital did, but I have big fears that they may not follow the procedure that would best show this. Her MRI is today, so all my fingers and toes are crossed. Otherwise, I may have to visit Dr Towfigh in person as she is now not able to consistently attend school in her final year due to the pain.

  • Jjpugsley

    Member
    April 14, 2018 at 12:46 am in reply to: Trying to Get A Hernia Diagnosis

    1 minute ago

    This is sounding pretty familiar. My 16 year old daughter suddenly started having pain in her lower right abdomen area. Since it persisted a week, we went to the Dr. She ordered an ultrasound which showed multiple ovarian cysts. Gyn put her on the pill and said come back in 3 months. 2 months later we had another ultrasound. This showed the cysts were gone, but the pain was still constant. It was not related to her period or to eating or not eating. Exercise and activity intensified it. Next had a CT scan. They couldn’t get the dye injected but she did drink some of the other imaging liquid. Nothing found although both US and CT scan report say a “large amount of stool” and that she’s probably constipated. She isn’t. The CT scan did mention that she might have a small Meckel’s diverticulum. Next did the nuclear med scan for gastric tissue. Negative. Pain now constant and severe. Last step: we just had a diagnostic laparoscopy. Results: everything looks normal!! Didn’t even see the diverticulum. My poor girl just cried when she came out of surgery and was told. Then I found this site. It seems to fit but wouldn’t the surgeon have seen the hernia? Please note that her brother had an inguinal hernia repaired at Sholdice when he was 18. Any help would be greatly appreciated!