Forum Replies Created

  • Nightmare

    Member
    November 11, 2022 at 2:35 am in reply to: Mesh Removal? – or something else?

    @good-intentions , thanks again for trying to share of your experience and wisdom.

    even if I have a new user on this forum, believe me, I’ve read almost all topics in here , I saw what other people are struggling with …tried maybe to learn something.

    The video I already saw it right away after the live session.
    It might be that Dr. Muschaweck. cannot help my particular case as she is more oriented to groin hernias, and mesh problems in groin erea etc

    Immediately after the surgery I almost had a consultation with Dr Muschaweck, but it went down as I could not travel that time to Germany, and afterwards tried everything that cross my mind to improve my side effects from the surgery.

    The top surgeon in Romania, with whom I that had a very detailed chat upfront my surgery were I explained what I do and likely would like to do afterwards, and somehow he kinda told me a story that I will be ready for going back at the same level in max 6 weeks, as this is pretty routine …

    Immediately after the surgery, I told him that I have the feeling that my torso & rectus muscles feels like the are twisted or dragged in the right flank, told me something like : “even DaVinci sculpture weren’t symmetric” – and I can swear to God that this is what he gave as a reply.. šŸ™‚

    He also said that these feelings that my torso is twisted is just in my had and that I’m emotional..
    I said ok I will give it 6 months – 1 year ,1,5 years , but what if that feeling will never fade away and the problems that I have will still be there, what then?

    He told me directly like this ” the mesh will get out only when you will be in the ground” ..

    So that was my last appointment ,never been/talked to him since then..

    I went to other 5 doctors in Romania, they all gave their opinions about my situation and all 5 saw what I’ve complaining, but only 2 of them said that would be a great idea to explore what is happening with the mesh and to consider to remove it as something over there is “to tight”.

    The others said that mesh/mesh explanations are not something that they don’t do, one of them was pretty honest and said he is afraid that somehow will make it worse.

    Right now trying to find somebody that would like to understand exactly what is causing my back problems and if is the mesh can we do something about it?
    If yes, what are the risk of doing more damage that currently I have…

    Anyway , I really don’t get it, how a doctor will deny immediately a patient when he says that he is feeling that something is hurting or not ok.
    I mean I guess he has the medical expertise of 15-40 years whatever , but also us we lived in our bodies for more than +30-40 years, should be a joint efforts and based on both experiences…
    I mean , I’ve ran ultras , I know better that anybody what physical pain is and how u can manage it , also I know almost every piece of my body how acts , muscles engagements , laxity etc. I have a high level of body awareness and somebody saying that its all in my head…

    I had +3 years ago my ACL surgery , recovery is hell , and went from marathons to ultra without my ACL in my knee…So, I know what pain is, I know that sometimes recovery is like watching the grass grow…but my problem that I currently have I felt it from the first day after the surgery that is not something that will go away… but I said ok lets give it time to settle it, sometimes I started to doubt myself maybe indeed is in my head.

    I did every day since, and I mean it , every day PT and I cannot find the right path to improve it or contain at least my back problems.

    Anyway..its been and gonna be a hell of a journey

    • This reply was modified 1 year, 6 months ago by  Nightmare.
  • Nightmare

    Member
    November 7, 2022 at 12:48 am in reply to: Mesh Removal? – or something else?

    @drtowfigh, thank you for taking time to reply and offer some suggestions.

    I will reply below to some of your comments:

    – Dr Radu was the person who performed the surgery. šŸ™‚

    – As far as I understood the mesh was not secured, just the space was created but it was also inserted starting below right side of the rectus muscle till my hip or at least ‘as much as he could laterally’ this is how he expressed after the surgery. (15cm long by 9 cm wide). Also he said that I can still develop an inguinal hernia as probably the mesh is not covering that canal. Maybe these details matters for your opinion.

    – also I understood that I have some permanent sutures in my muscles, i can feel them also by touching the scar through the skin etc.

    – on my pre-surgery CT my defect was 0,5 cm wide by 2-2,5cm long. During the surgery i understood that the defect was larger but maybe also due the abdominal gas that they inserted when the did the measure etc…

    – the main problem that I have is with my back, I always feel that my torso is twisted to the right flank, and my opposite side of the ribs / rhomboid / trapezius muscles /erector muscles whatever is overcompensate or being forced to work in incorrect posture.
    I also have the feeling that my rectus muscles is pulled or stretched to the right flank and you can see also when I breath how my linea alba is bended in a C-shape.

    I felt this way and saw it immediately after the surgery, but the back pain became worse and worse.

    When it comes of the PT, I’ve tried almost anything, i have the work ethic and the patience when it comes to recovery, sports etc …I’m stretching my back daily ,trying to make it stronger at least to improve a bit my situation ,but nothing seems to work at least till now.
    My concern is that somehow I might see that I start to develop an overstretch of the linea alba.
    P.S. – I’m not overweight, never been ,so no extra abdominal pressure.

    From running ultramarathons with that whole in my right flank to this…never anticipated to be honest.

    I don’t know what to do, or if I can do anything, but I’m miserable and my back hurts even if I seat all day on a couch doing nothing.

    • This reply was modified 1 year, 6 months ago by  Nightmare.
  • Nightmare

    Member
    November 5, 2022 at 11:49 pm in reply to: Mesh Removal? – or something else?

    @good-intentions, first of all thank you for your thoughts and ideas.

    Well thightness and lack of flexibility might be a common problem for mesh , but in my case as it is on my right flank it took away the ability of the tissue to expand.. iā€™m not a doctor or PT , but i know my body very well and somehow that changes how the internal pressure flows in the abdomen.

    I wrote to doctor Koch , but it seems that via the clinic email address is not that easy to reach as i did not got any response.
    Do i have any other viable options around Europe?