eller642
Forum Replies Created
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Does my Grandma have a hernia
She could definitely have a hernia that is being missed on CT scan. I had CT scan and multiple MRIs that didn’t show a femoral hernia on the left and two hernias in the right, one with nerve entrapment that was very painful. I know Dr. Towfigh has said repeatedly that a lot of times the scans are just misread by someone that is not very familiar with hernias in women. Don’t give up and just live with the pain becaise if it is a hernia, it can be repaired by a specialist. I hope you find answers soon. It is a very frustrating process! Best of luck.
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Chronic pain and recurring Hernias
Reading your post sounds so familiar. I had no idea at the beginning of this journey that I would have been in pain for 2 1/2 years and have had five surgeries. The first surgery was a hysterectomy that I really didn’t need, but the thought was that my pain was being caused by my large uterus. When that wasn’t successful, I went to a general surgeon who suspected that I had a hernia or perhaps a sports hernia (I used to play tennis before all this). I had repair of a femoral hernia and also the mesh was placed to cover a torn muscle/ weakness. Well the pain continued and I decided to travel to see a specialist (wish I had seen one to start). I went to see Dr. Heniford in Charlotte, NC, who recommended I go to Annapolis, MD to see Dr. Igor Belyansky, because of nerve pain. As soon as we met with him, I knew he would be the one to help me. The first surgery with him was a triple neurectomy, which helped with tingling and burning, but didn’t resolve my real pain. He started small and said he could do mesh removal if necessary. He suspected that the mesh to fix my femoral hernia was also covering the torn muscle that was causing my pain. He said that if you cover a torn muscle with mesh that you still have a torn muscle that needs to be repaired. I had surgery 2 months later, July 2014, to remove mesh and tacks laparoscopically and open repair of the sports hernia. Things were going along well and I started PT 8 days after surgery to strengthen my core. Ten weeks into PT I started having similar pain on the right side, even though I was in complete denial at first, I knew what it was. Another setback 2 weeks later, I fell down some stairs and reinjured the left side. Lots of swelling and increased pain on the left side, so we waited 3 months and had MRI, which didn’t show the torn muscle or the problem on the right. I am so thankful that Dr. Belyansky believed me and was willing to help me. I refused to believe that this pain was my new normal! I had surgery end of February, open on both sides, to fix a torn muscle next to the repair on the left (probably due to the fall) and a hernia with protrusion and nerve entrapment (another neurectomy) on the right. While the recovery has been very painful and discouraging at times, I am starting to feel better. Doing PT is very helpful and also helps with scar tissue. I know I will keep getting better! Don’t let anyone tell you that hernia pain is something you just have to live with. I know that is something that Dr. Towfigh has stressed on this forum and it is great advice. Seek out a specialist that believes you have pain from a hernia, even if that means traveling. Dr. Belyansky is 4 1/2 hours from home, but well worth it. Luckily Anne Arundel Medical Center has a hotel of sorts, that is run by the hospital, and is right across the street and the perfect place to recover! Sorry for the book, wanted to get my point across to try to help others.
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Laparoscopic or Open Approach
Great questions. I thought, or at least hoped, that after the initial repair my pain would be gone. I now know that some of the original pain was nerve related and after the repair, I had nerve pain as well. I was told that there was no guarantee that the repair would fix my pain because there seems to be a correlation between pre op pain and post op pain, but I didn’t see any other option. The repair did help the pain initially, it became more of a pulling pain. Now that I have had the neurectomy, the tingling and burning pain are gone. I am hoping mesh removal will help because there is pain right where the tacks and mesh can be seen on MRI, almost like trigger points when pressed on. In my case, I am hoping pure tissue repair proves to be better. That is what I will have when the mesh is removed, the Dr. said he would not put another mesh in me after all the pain issues I have had. It is very difficult to understand and after many conversations, that is how I best describe it. Hope this helps!
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Laparoscopic or Open Approach
Yes, the constant pain is very difficult to deal with, but I refuse to give up. I am 49 years old and have lots of living left to do! I had my original femoral hernia repair done by a general surgeon, in Virginia Beach, whom I liked very much. I was having severe pain with the hernia and possible nerve involvement, so I think I should have pursued a hernia specialist to start with- hind sight is 20/20! Since the original repair, I have still been in severe pain, but the pain was a little better right after and the pain now is somewhat different. Dr. Belyansky performed a triple neurecromy, which helped with the burning, tingling pain, but did not resolve the sharp pain in my groin and around my pubic bone. I am now scheduled for open tissue repair of the hernia and lap mesh removal (before surgery we did discuss the possibility of mesh removal if neurecfomy did not resolve the pain, but thought we would start small). Mesh removal will be a much more difficult surgery, especially as far as recovery goes. Ready for the 2 year ordeal to be over!
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Laparoscopic or Open Approach
I don’t know how close Annapolis, MD is for you, but there is Dr. Adrian Park and Dr. Igor Belyansky, who is director of the Abdominal Wall Reconstruction Program at Anne Arundel Medical Center. I am currently seeing Dr. Belyansky for problems with a hernia repair and he is great. Very knowledgable about hernias and problems with hernia repair and nerve issues as well. He is also the nicest and most caring doctor I have ever been to see. He was fellowship trained at The Hernia Center at Carolina’s Medical Center. He comes highly recommended from the director there. After seeing many doctors for my problem, I feel like the solution is with Dr. Belyansky. I truly appreciate all of the help and advice offered by Dr. Towfigh and wish that she wasn’t so far away from Va. Wishing you well!
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Possible femoral hernia
I have been posting in the femoral hernia topic section and when I read your post it sounds so much like the symptoms I was having at the start of my ordeal. I think, after my experiences, it is so important to see a Dr. That specializes in hernia repair and knows about hidden hernias in women and also about the involvement of nerves and how to address the pain caused by nerve involvement. I wish I had seen one at the beginning of my journey and could have avoided nerve problems and the possibility of mesh removal. Dr. Towfigh gives excellent advice and guidance. Hopefully someone will read MRI that knows what to look for and this can be resolved quickly and you can get back to living life! I am still working towards that, but haven’t given up.
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