Forum Replies Created

Page 7 of 116
  • Good intentions

    Member
    December 14, 2023 at 7:59 pm in reply to: So it turns out my hernia is direct- Dr towfigh???

    Where did you hear it?

    Your comments seem familiar. Hard to place.

  • Good intentions

    Member
    December 14, 2023 at 2:00 pm in reply to: Good Intentions/ Dr. Towfigh

    Strange story. Where did he have the mesh implant surgery? Why does he need it removed? Why would he trust someone who has not had hernia repair yet, and is still asking the old questions about Kang verus Shouldice? How will a laborer on Mexico level wages afford surgery in the US?

    Very odd. Entertaining though.

  • Good intentions

    Member
    December 13, 2023 at 11:11 am in reply to: Inguinal hernia surgery & Redundant Colon

    Redundant colon. That’s a new one. Good luck.

  • Good intentions

    Member
    December 14, 2023 at 8:24 pm in reply to: Tips and tricks to avoid pain before or after hernia surgery

    I’ve been wearing the supporter band I described in the first post and it really does help. It protects the whole area across the lower abdomen, right across the areas of the direct hernias. The inguinal canal location. It spreads the load and minmizes external irritation.

    It’s really just a modifed truss as far as I can tell. But the ones I bought came two to a pack for just $15. A cheap test for anyone considering a truss.

  • Good intentions

    Member
    December 14, 2023 at 8:18 pm in reply to: The value of litigation

    Here is more about the J&J settlement mentioned above. Even though J&J removed Physiomesh from the market in 2016 the suits and settlement actions continued.

    It will be interesting to see how these payments continue in the future as or if new suits are filed. Once precedent is set, then each new suit has something to refer to determine an appropriate settlement. All of those seeds planted for other mesh types, and the odds are known for many. I wonder if investors are calculating the risk. Or will the public pay the settlement costs through higher insurance rates.

    Also interesting that registry data was used to show how bad Physiomesh was. It might explain the seeming resistance to registries, but it also shows their value to the public. Registry data should be made public and easily searchable.

    Physiomesh is meant for ventral hernias, but the same issues apply to inguinal hernia mesh. Ethicon has a broad portfolio of meshes designed by the same people that designed and tested Physiomesh.

    https://www.medtechdive.com/news/jj-hernia-mesh-settlement-prompts-judge-to-dismiss-more-than-200-cases/701668/

    “…

    Ethicon withdrew the products after an analysis of two independent hernia registries linked laparoscopic ventral hernia repair using Physiomesh to a higher average rate of recurrence and reoperation than a set of comparator meshes.

    …”

  • Good intentions

    Member
    December 14, 2023 at 8:01 pm in reply to: Good Intentions/ Dr. Towfigh

    Which member? I can’t recall any member reporting a recurrence after playing tennis.

  • Good intentions

    Member
    December 14, 2023 at 1:42 pm in reply to: Difference between mesh fixation vs no fixation..

    Professional athletes generally avoid mesh. That is a reality.

    Not really clear who you are, you sound familiar, but for anybody that comes across this thread – just read the posts from the beginning of the forum. Nothing has changed. Nothing has improved. You might think that “they must have solved these problems” but they have not. It’s all the same, just more of it. More laparoscopic methods and more mesh being used. I am not exaggerating. The same stories, the same inconclusive research studies. It is pretty amazing how consistent things have been. The paper I linked above is from 2023. Inconclusive, but the question about fixation is decades old.

    Robotic surgery is just automated/remote TAPP surgery. General anesthesia with a transabdominal approach to the posterior wall. The same meshes and fixation methods are used. The odds of the results will be the same as a TAPP procedure.

    I really do wish I could be more positive and deliver the good news that the forum was intended to deliver. But things have stayed the same over the years. The means to cause improvement seem to be developing but the pace of progress is glacial.

  • Good intentions

    Member
    December 14, 2023 at 11:22 am in reply to: The FDA in the spotlight for failing to protect the public

    It’s not spam Cursed. Many surgeons assume that the FDA will save them from using poor medical devices. They think that if the device is “FDA-approved” that it will be good for the patient. The evidence though, shows that the FDA is at this point in time essentially a “rubber stamp” organization, through the 510(k) process. They don’t actually do any substantial investigating, even though their own database is full of reports of harm from a variety of mesh products. They depend on the various industries to “self-police”. It’s why the surgeons that know about this are calling for registries and device tracking. It’s one of the reasons for organizations like the ACHQC. The government agencies are failing us, both surgeons and patients. Surgeons, and patients, will have to identify and call out these bad products so that they can be avoided.

    The FDA only seems to get involved if very serious harm occurs. Death, or seriously debilitating effects. Mild daily suffering is not enough.

    Sorry that I did not respond to your last message. Please create a Discussion on the main forum so that other people can help answer your questions. Good luck.

  • Good intentions

    Member
    December 14, 2023 at 11:08 am in reply to: Difference between mesh fixation vs no fixation..

    “No fixation” is also associated with chronic pain. Apparently, there is no definitive evidence supporting either. Publication linked below. People should also be aware of the many different types of “fixation”. Sutures, absorbable tacks, titanium tacks, staples, glues, etc. Even the “no fixation” meshes, like Progrip, actually use a sort of fixation, it’s just already attached to the mesh.

    The surgeon who implanted the mesh in me was very proud of his creation of the “perfect space”, so the mesh would not move. He described it to the friend-surgeon that recommended him. The mesh was out of place, it had dropped-migrated downward, and was folded on the direct hernia side, when it was removed three years later. The perfect space didn’t work.

    Sorry Dr. Towfigh, but these are just the real-world things that happened to me. I had all of the boxes checked for a perfect result, the expereinced surgeon, the lightweight mesh, the TEP procedure, no fixation, etc. It wasn’t even close.

    Also note how the authors of the paper below used “No evidence for fiaxtion” in the title but the actual work shows no evidence for either. I don’t think that they are actually trained in the scientific method. Their biases are evident. I don’t understand how it happens but it’s right there in the work they published. IT’s very disconcerting. The title should clearly state the matter is undecided.

    <b data-test=”article-title” data-article-title=””>No evidence for fixation of mesh in laparoscopic transabdominal preperitoneal (TAPP) inguinal hernia repair: a systematic review and meta-analysis of randomized controlled trials

    <b data-test=”article-title” data-article-title=””>

    https://link.springer.com/article/10.1007/s00464-023-10237-0

  • Good intentions

    Member
    December 11, 2023 at 6:22 pm in reply to: Tips and tricks to avoid pain before or after hernia surgery

    Another thought, that I will be trying soon. Suspenders.

    I am still “stretching the envelope” physically after the mesh removal. The site of the original hernia still gets sore after vigorous physical activity. Ideally, I think, if I can avoid all irritation of the area it will heal fully. Or, I’ll just have a set of tools to use in certain situations. Like wearing gloves when doing hard manual work.

  • Good intentions

    Member
    December 10, 2023 at 12:45 pm in reply to: Surgeons collective to improve outcomes for hernia patients

    That’s good to know Dr. Towfigh, thank you. I have saved the link to the ACHQC page so that I can keep track of when this information becomes available to the public. I’m surprised though, that no surgeon, doctor, or educator has parsed through the data available to them as professionals and reported on the worst products. So that surgeons and patients can avoid them. Since nobody is removing the bad products, and surgeons keep using them. See the Aaron Stinson plug lawsuit. He had a plug implanted in 2015.

    If the knowledge of the problems with plugs had been collected and reported maybe his surgeon would not have used it. Your advice has been to “trust your surgeon”. Harry Stinson did. Now he’s been harmed and his surgeon’s name is out there as the one who harmed him, along with Bard. It’s just how things look from outside.

    The ACHQC work can fill in the gap that the device makers have left. Failure to warn. An open database, constantly tabulating results could have enormous impact. The device makers won’t be happy though. I will be surprised if the actual brand names of the products are actually shown to the public. Who knows though, I wish everybody involved the effort good luck.

    https://topclassactions.com/lawsuit-settlements/personal-injury/man-awarded-500000-over-hernia-mesh-injuries/

  • Good intentions

    Member
    December 10, 2023 at 12:33 pm in reply to: Scathing (imo) report on pelvic mesh bmj

    It’s an example of the drift toward selling products, rather than improving patient care. Something to be wary of. The technology companies that will be supporting things like Shark Tank don’t really care about patient welfare. It’s why so many bad mesh products have made it to market and are still there. A focus on money over patients. The patients are the revenue sources.

    I’m just giving an objective view from the outside world.

    <header>https://www.sages.org/sages-update-from-president-horacio-asbun-2/
    </header><header>
    </header><header>”Finally, the NBT is being incorporated into the SAGES meeting for 2021 and into the future. The Emerging Technology Session will be re-branded as the NBT Session, retaining the same focus of the prior Emerging Tech Session. In 2021, a major and impactful change to the Shark Tank is being considered. Shark Tank will include a significant monetary award for the most promising innovation. Stay tuned for more details.”</header><header>
    </header><header>”We hope you will continue to keep SAGES and our mission, vision and core values in mind throughout the Fall and winter.</header>

    Mission: To innovate, educate and collaborate to improve patient care

    Vision: Re-imagining surgical care for a healthier world

    Values: Inclusivity, innovation, service, excellence, global community (and an unofficial value of FUN)”


  • Good intentions

    Member
    December 7, 2023 at 3:41 pm in reply to: Tips and tricks to avoid pain before or after hernia surgery

    Here is another that I just remembered. Many of us have probably worn our pants and belts the exact same way for years and have tried to go back the old ways after surgery. But even successful surgery is directly under the typical pants waistline or belt placement. I experimented with the placement of my belt buckle and end up sliding it over one loop. I also got one of those flat cam lock military type belt buckles that is infinitely adjustable. Unlike the typical belt with holes in it. The buckle is on the side, and I can adjust it on the fly in public without looking like I’m about to drop my pants.

    It’s kind of goofy to think about doing these things to try to be comfortable but it has been worth it for me.

  • Good intentions

    Member
    December 7, 2023 at 3:34 pm in reply to: Mesh removal surgeons

    Sensei305 said that he was prepared to do a pure tissue repair on him after his mesh removal. But he ended up going to somebody in Florida.

    Pretty sure that he would tell you over the phone. Good luck.

  • Good intentions

    Member
    December 6, 2023 at 1:25 pm in reply to: Mesh removal surgeons

    Here is Dr. Krpata’s main page at the Cleveland Clinic.

    https://my.clevelandclinic.org/staff/20162-david-krpata

  • Good intentions

    Member
    December 6, 2023 at 1:24 pm in reply to: Mesh removal surgeons

    Dr. David Krpata of the Cleveland Clinic. Here is a story involving him, I will follow with a link to his web page.

    The story is very very familiar to anyone that has had mesh problems. Somehow, all of these surgeons made it all the way through medical school and residency without becoming aware of the problem even though approximately 15% of patients who receive a mesh repair experience problems. Why are the educational facilities for surgeons so poor regarding hernia repair? Almost seems intentional.

    The math seems to show that she had the mesh implanted in 2018.

    https://my.clevelandclinic.org/patient-stories/383-woman-relieved-from-chronic-groin-pain-after-hernia-mesh-is-removed

  • Good intentions

    Member
    December 6, 2023 at 12:52 pm in reply to: Mesh removal surgeons

    I almost forgot to add Dr. Peter Billing of Transform Weight Loss. He removed the mesh in me, and also did one side of sensei305.

    It’s not promoted at all. It’s buried way down at the bottom of the page.

    https://www.transformweightloss.com/weight-loss-solutions/hernia/

  • Good intentions

    Member
    December 6, 2023 at 12:44 pm in reply to: Mesh removal surgeons

    Here is a plastic surgeon who does mesh removal. But apparently does not do inguinal hernia repair. If you go to the top of the page under “Body” and work through the sub-menus you’ll only find umbilical hernia repair shown. Interesting. But he does remove mesh. He has been mentioned on the site before. Dr. Repta, in Scottsdale Arizona.

    https://www.drrepta.com/body/hernia-repair/mesh-removal-after-hernia/

  • Good intentions

    Member
    December 6, 2023 at 12:39 pm in reply to: Mesh removal surgeons

    Another New York based surgeon. He is right at the heart of the problem, implanting mesh via “MIS”, also removing mesh via “MIS”. I wonder if he has removed the same mesh that he put in. Dr. Mark Reiner.

    https://www.nycherniasurgery.com/hernia-mesh-removal/

  • Good intentions

    Member
    December 6, 2023 at 12:36 pm in reply to: Mesh removal surgeons

    Here is a practice with many surgeons that I have not heard of. They have a whole page about complications and the possible need for removal. I assume that they do it.

    When I had mesh problems the surgeon that implanted the mesh never even considered trying to remove the mesh himself. Even though he was in residency at the Mayo Clinic at the same time as Dr. Billing, who did remove the mesh. Similar training and experience, one would do it, the other wouldn’t.

    https://www.winthropbariatrics.com/other-laparoscopic-surgery/hernia-repair/mesh-removal-after-hernia-surgery.php

Page 7 of 116