InPain
Forum Replies Created
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Thank you NFG12 and Mesh for sharing your stories. I don’t feel I have any other choice than to get the mesh removed, but I will definitely try to avoid neurectomy. I wore a jeans for an whole day this weekend, and just that gave me so severe pain I haven’t been able to leave my home for days. So I feel that leaving the mesh inside is also a risk and it will for sure not make me better. What other options do I have? I will get the mesh removed laparoscopically by the most qualified surgeon I can find, and just pray I will get better.
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https://www.youtube.com/watch?v=BqjxPskAcMs&t=5s
“The final Parietex unboxed in this video is the Parietex Progrip. The Parietex Progrip was designed to not need any securing device, such as tacks, sutures, or staples. Instead, the Parietex Progrip has 1000’s of little hooks made of Polylactic Acid (PLA) attached to it. The PLA hooks act just like Velcro to the patient’s tissue. Once the Parietex Progrip has been implanted, it is nearly impossible to remove. Many clients report severe, debilitating pain from the moment the Parietex Progrip is implanted.
There are even more problems with the Parietex Progrip though. Our lawyers have observed abnormally high infection rates associated with the Parietex Progrip. Hernia mesh infections almost always necessitate the removal of the hernia mesh to rid the infection. This is because hernia meshes are prone to the formation of biofilms, which are nearly resistant to even the strongest I.V. antibiotics. Unfortunately, the Parietex Progrip can be so dangerous to remove that many surgeons simply refuse to reoperate on a patient. As a result, many clients are having to live with an active infection, possibly for the rest of their lives. These are large infections that frequently go systemic. Hernia mesh infections can lead to additional serious injuries, including death.
Like the Parietex Composite, the Parietex Progrip also had a strong smell of disinfectants upon unboxing.
It is the opinion of the lawyers at the Hollis Law Firm that the Parietex Progrip is one of the most defective and dangerous hernia mesh products currently on the market!”
Dr Towfigh and other surgeons on this site: In your experience, is the Parietex ProGrip impossible to remove without making much more damage?? When the Polyacitc Acid is absorbed after 18 months, will it then be possible and easier to remove?
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parietex progrip removal, an exercise in futility?
Seems like more and more surgeons use robotic for hernia surgeries and removals of mesh in America, but this is not the case in Europe. I couldnt find anyone who perform robotic mesh removal here. Most surgeons here remove lap mesh through open surgery. I have found a surgeon who can remove my mesh laparoscopically, and he had 0 complications after 12 mesh removals. I have only seen one study and that one had 14 complications after 17 lap mesh removals, and 1 complication after 9 robotic removals. So I don’t know if robotic is better or if it depends on the surgeon.
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Modified Kugel open technique
You have done your homework. To repair a small 5mm hernia with a double layered mesh is in my opinion crazy.. It seems that for some surgeons, the only criteria for success is no recurrence.. I would swap this severe pain caused by the mesh against recurrence any day.
Most studies on different types of hernia repair just show the figures of “chronic pain”, but doesn’t differentiate between life changing severe pain that some people get with mesh complications, and some discomfort now and then.
I have already made the mistake of having what they called a minimally invasive surgery with a very experienced hernia surgeon. The laparoscopic procedure itself is minimally invasive, but the 15x13cm mesh is not.
For a small hernia like you have I think you should stay on the path of finding a very good surgeon who can perform either Shouldice or Desarda. If mesh repair is the only option, I would choose a mesh like Tigr Matrix or Phasix and not a permanent mesh.
I’m no doctor, this is just my opinion based on the research i’ve done myself and my experience with hernia surgery.
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Pulsed Radio Frequency ablation treatment?
I have severe pain after hernia mesh repair, and was going to try PRF, but two pain specialist i’ve talked to told me not to try it. That it would most likely make my pain worse when the nerve “wake up again”. They told me the same thing about cryoneurolysis, even though these are two of few treatments that studies have shown can give great pain relief for a long time for patients with our problem.
If the doctors here or other people have any experience with prf or cryo, please give us a respond.
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Pain after inguinal hernia repair using PHS.
Question from “fromindia25” to the surgeons, he forgot his password.
“Can inguinal hernia surgery with dual layer mesh if it folded, cause pain in feet or leg below the knee ? Can the femoral or sciatic nerve be injured by open repair with prolene hernia system?”
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Pain after inguinal hernia repair using PHS.
If you are still struggling to find an surgeon in India who can remove your mesh, maybe you should consider travelling to Europe? Cheap tickets between Delhi and London. I talked to a woman who got her mesh removed by Peter Jones at the South East England Hernia Clinic, and she was pain free and doing great. He also repair the hernia with the shouldice method, and never use mesh. You also have some very experienced mesh removal surgeons in Germany.
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Laparoscopic mesh removal vs open removal
Thank you. This gives me hope, that if the mesh has to be removed, I can get my life back.
Is there any difference on what kind of mesh is placed? Is Parietex mesh harder to remove than Polypropylene mesh? -
Lingering problems after possible scar tissue break
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Lingering problems after possible scar tissue break
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Pain Diary
Dear 21tomlinson,
Thank you for sharing the pain and agony you struggle with every day, and I think many of us can relate. I’m in the same situation as you are, and I know the feeling when you just want to give up, because nobody in the health system seems to care or understand how severe this pain really is. I’m not able to work or do anything now, and the pain has been so bad the last two weeks that I have been close to calling the hospital and ask them to either help me with the pain, or have the decency to just euthanize me.. Everyday is a struggle.. Most days i’m also waking up almost pain free. On good days I can walk around for 3-4 hours with little pain, and on bad days I can’t even wear underwear for five minutes before the pain is out of control.The pain we are suffering now is not going to last forever. We are both going to find the right doctor who really cares, and don’t quit searching for the source and the solution for this pain. You probably have checked out if pulsed radiofrequency can help you? I’m not sure if botox is possible in that area, but I know they inject it into the bladder muscle, for pain after hernia repair and abdominal cutaneous nerve entrapment syndrome with success. In a couple of years, it will come a new medicine that is very effective against nerve pain. This medicine already exist today, but is only used against cancer. http://www.ncbi.nlm.nih.gov/pubmed/26475804
Keep on fighting and this pain eventually will just be one bad memory.
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Severe pain 14 months after TEP-repair
Thank you for your answer Dr Towfigh.
I’m not sure if it was ProGrip mesh or some other starting with P, my first surgery report got lost at the other hospital.
The strange thing is the first three days after I woke up after my second surgery, I just had normal postoperative pain. But it was so much tighter, and I think it is this “pulling” from where the mesh is that are causing this pain and inflammation response I have now.
Is it possible to see the mesh with Ultrasound?