Forum Replies Created

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  • Mesh

    Member
    August 27, 2016 at 2:24 pm in reply to: Post surgery thoughts

    Post surgery thoughts

    Would pain be the only reason to fix a hernia?
    I mean if the if the odds of serious complications like strangulation are so rare like .5%
    why fix it at all? Why take the 20-30 percent chance of having chronic issues with mesh?

    Good post btw….most of it.

  • Mesh

    Member
    August 16, 2016 at 3:00 am in reply to: Suffocation after Removal

    Suffocation after Removal

    Thank you for your reply Dr. Towfigh
    I don’t know if the neurectomy
    is the cause of it.
    Wondering if you knew or heard of that? My pulse barely gets above 45 and before removal I could feel my heart race and now everything barely
    pumps and flows. I would think a panic attack I would feel a racing heart and excitable, now it’s just the opposite.

  • Mesh

    Member
    July 9, 2016 at 5:25 am in reply to: Central Pain after Neurectomy

    Central Pain after Neurectomy

    Joy,
    I had a triple neurectomy following inguinal mesh removal. It is the cruelest thing a dr can do to someone in my opinion. I have all the same issues you’re describing. The Dr who performed mine made it seem like it was routine. 2 years later, I’m partially crippled from it and in a lot more discomfort and disfigured. I have a tens unit I search for answers all the time. It is a frustrating position to be in.
    I haven’t spoken to many people who have had success with them. I think surgeons should never recommend them to anyone at anytime. I continue to hope as you should too.
    I feel for your situation. I feel like I’m in danger everyday. It’s scary.

  • Mesh

    Member
    July 6, 2016 at 7:47 pm in reply to: Mesh After Removal

    Mesh After Removal

    Do surgeons sell the mesh?
    Does the pathologist buy it or any other institutions for research?

  • Mesh

    Member
    January 10, 2016 at 7:25 pm in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    Thank you Dr Towfigh for your response.

    What type of mesh would you use? Would this solve the prolapse or collapse of the region?
    Everything collapsed but I don’t see a bulge, just heavy weight and burning pain on both sides now. Pushing down on top of base of penis and testicles. Spermatic cords get a little puffy at times.

    I wasn’t properly informed of these risks.

    Is there someone you reccomend in the Pacific Northwest?
    Portland/Seattle

  • Mesh

    Member
    January 9, 2016 at 4:38 am in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    “Chuck”
    To say “at the expense of their own time” ?
    Patients usually are paying for that time.
    I paid out of pocket and they also billed the insurance
    company for “their time”.
    My surgeon was compensated just fine for his time at the expense of many patients pocket books and quality of life.
    In my case they got the better end of the deal.
    I think judging if they really can help a patient should be considered part or the art vs just doing surgery to keep the doors open.
    Who’s really a candidate for mesh removal?
    What’s protocol for determining the patients need to remove mesh?
    Is it worth the risk of making someone worse off?

  • Mesh

    Member
    January 8, 2016 at 11:20 pm in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    Dr. Towfigh
    I will give it another attempt thanks.
    I have a hypothetical question.

    I feel after removal my stomach collapsed in my groin
    pushing everything down. I also feel the beginnings
    of a hernia on both sides.
    I had open insertion and open removal on the right side.
    How would I be able to repair this? How would you
    address this problem and what type of mesh would you insert laparoscopically? Exactly how would you do it?
    I’m scared to stand up as its hard to hold my stomach properly. Heavy sinking.
    Please help.
    Thank you,
    Anthony

  • Mesh

    Member
    January 8, 2016 at 10:33 pm in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    “Mesh Removal Patient”
    I am drastically worse.
    Feels like I have a prolapse.
    Both spermatic cords burn.
    Both legs burn down inner thigh
    to my knees. I can’t walk comfortably anymore.
    I feel disabled partially. Can’t have sex properly.
    I’m depressed, I should have never trusted this.
    Stomach is so off and tight Im suffocated sometimes.
    Torture.

  • Mesh

    Member
    January 7, 2016 at 8:54 pm in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    Hi “Chuckles”,
    I think he states “little improvement with the pain” meaning little improvement of fixing the pain.

    This topic really is tailored around informing a patient to what a procedure entails vs selling surgery and also the discretion of advising removal to someone who is considering it. Basically ethics.
    Because you may have some discomfort with mesh, being told by removing it it will solve all your problems with sometimes “instant relief” is hard to digest and not always the case. Not sitting down with a patient and discussing the details of a neurectomy and what it may do to your body is a big deal and should be explained in detail. I think some surgeons avoid that so they can get a sale. Like Dr Towfigh has mentioned many times it’s a drastic procedure especially done openly.

  • Mesh

    Member
    January 6, 2016 at 9:10 pm in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    Thank you for you response Dr Towfigh-
    I filled out the contact information on your site. BTW it’s a very nice site.

    Sorry to be graphic but after going to the bathroom #2 it feels like my stomach bloats even more and I can’t breathe like I’m suffocating.
    Everything feels dry also. Did my stomach shrink? Pulling down on my esophagus? Neurectomy?
    I’m small 5’8 150 lbs.

  • Mesh

    Member
    January 5, 2016 at 9:31 pm in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    That depends on who you ask.
    As part of my point is that there’s some
    surgeons who solicit this procedure
    out there who determine that any discomfort is soley from the mesh and are eagerly wanting to remove it at any cost to the patient. It’s apparent removal may only benefit the surgeon, not the patient. It’s a question of discretion and ethics. It’s easy to scare a patient and tell them they need to get their mesh out. It’s not a perfect world out there unfortunately. I know people who are being consulted by phone 1000 miles away being told their mesh needs to be removed without seeing any imaging or physically examining the patient.

  • Mesh

    Member
    January 4, 2016 at 6:53 am in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    Thanks Dr Towfigh,

    Any help at all would be greatly appreciated.
    I guess I will contact you via email?

  • Mesh

    Member
    January 2, 2016 at 5:46 am in reply to: To Remove or Not to Remove?

    To Remove or Not to Remove?

    I’m not sure if I’m allowed to disclose that here.
    I can tell you he is one of major advertisers out there for mesh removal.
    He performs very invasive open procedures. Severely traumatic.

    A surgeon who has done this operation before many times I believe should show some compassion and prepare the patient or educate them on what to expect after such trauma. Not just expect the patient to have all the questions. This felt like a trick, like a sale or a case study more than a service. More like you were being experimented on. I knew it but I failed to leave at the last minute.
    There’s always that thought about hey the mesh is going to come out and that will be a good thing but
    the price you pay for that is un imagineably torturous. The trade off is no comparison to your physical self before removal. It’s not conducive if you had any sort of a physical lifestyle prior to removal. It basically disables you severely. I can see removal for a balled up piece or an infection or someone who is limping in pain with mesh in but not for someone with discomfort and the mesh is in perfectly. You’re taking mesh out, cutting nerves and altering the anatomy with a very tense repair..how can that ever be better?
    Risky Business.

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