Forum Replies Created

  • LoriCx3

    Member
    April 13, 2016 at 10:55 pm in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    Dr. Towfigh- thank you for your response. I don’t know what would denote “debilitating”, but I have been unable to hold down a job for the last five years, have any kind of a sex life with my husband, or participate in any of my previous activities such as hiking, walking, etc. However, every time I have had a surgery that I was told was going to “improve my quality of life” ( starting with the laparoscopically assisted vaginal hysterectomy in 2007 which precipitated all of these additional problems) , it led to more complications. Because I have been in so much chronic, daily pain I cannot wrap my head around the possibility of being worse than I have been. Therefore, at this time, I have decided to not have the surgery. Perhaps at a later date I will re- consider. But at this point I am putting myself in Gods hands and believing for healing. At 46 years old there is still a lot of living I have left to do.

  • LoriCx3

    Member
    April 13, 2016 at 6:22 pm in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    After much praying, struggling and contemplation, I decided to postpone the mesh removal surgery. I have been seeking diligently for positive testimonies from people who have had inguinal hernia mesh removal but have yet to really find any at this point. The thought of being worse than I have been for the last five years is something that I can’t wrap my head around. Praying for a complete and total healing.

  • LoriCx3

    Member
    April 11, 2016 at 2:40 pm in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    Is there any data available to indicate which patients are least likely to experience improvement (co- morbidities, etc)?

  • LoriCx3

    Member
    April 11, 2016 at 1:32 pm in reply to: Pain after inguinal hernia repair using PHS.

    Pain after inguinal hernia repair using PHS.

    Wouldn’t be able to give you an answer to that comment. I have been living in constant pain for five years ever since I had a bilateral inguinal hernia repair with mesh put in. I finally found someone who is willing to remove the mesh-however, there is no guarantee that it’s going to help. I was advised that it could in fact, make me worse and cause more debilitating pain or other potential problems than what I’ve been experiencing for the past five years as it is. I have been unable to work, have any kind of a social life, etc. due to the constant pain. I suggest seeking information from the hernia society to find somebody who may be able to help you get to the root of the problem. Prayers…

  • LoriCx3

    Member
    April 11, 2016 at 1:21 pm in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    Dr. Towfigh- are there any cases of positive outcome related to laparoscopic inguinal mesh removal five years postop? Everything that I have read or heard of so far over the past year or so have all been horror stories. Obviously my biggest fear is undergoing a complex surgery only to be made worse than what I am now, which is pretty much disabled due to the chronic pain. The left groin pain actually started following surgery for salpingo oopherectomy from ovarian torsion in February 2011. I believe that the repair was done with the assumption that there may have been something going on, when in fact it may have been nothing more than my body’s response to a surgical procedure in which my body needed time to heal. There’s always a thought in the back of my mind that the pain I’m experiencing is related to the salpingo-oopherectomy and not fully due to the hernia repair. Can’t find any GYN in this area to find out if that is the case. They all talk about possible risks of laparoscopic surgery for lysis of adhesions but now I’m faced with the same risks if not more so regarding this mesh removal surgery

  • LoriCx3

    Member
    April 11, 2016 at 1:15 pm in reply to: Pain after inguinal hernia repair using PHS.

    Pain after inguinal hernia repair using PHS.

    I’m not a doctor so obviously cannot give you medical advice. But I had a similar pain up towards the top of my hip bone as well as the bottom of my groin on the outside of the vaginal area. The pain increased after I had an Extertal neurectomy.

  • LoriCx3

    Member
    April 11, 2016 at 12:37 pm in reply to: Pain after inguinal hernia repair using PHS.

    Pain after inguinal hernia repair using PHS.

    Sounds like nerve involvement.

  • LoriCx3

    Member
    April 9, 2016 at 2:01 pm in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    You mentioned going west to rule out mesh related pain. Did you not have mesh removed from Dr. B? I discussed mesh removal with triple neurectomy as well but he wants to do only mesh removal.

  • LoriCx3

    Member
    April 9, 2016 at 12:55 pm in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    Actually I live in RADFORD about 30 minutes from VT. I too was referred to dr. B by HENIFORDS in Charlitte. It amazes me how all I heard was that if he can help then no one can but then he refers me to Dr. B. Maybe because we are women? I developed pain immediately after the repair and I can put my finger on the pain although I do have referred pain from the tip of the hip bone down the groin and pelvis. To me it feels like someone has my nerves and tissue in a pair of pluses and is twisting and pulling. What makes it worse? Stretching out my leg on that side, going up stairs/inclines, crossing leg, leaning forward and putting pressure on area, squatting. There have been times I get pain across the lower pelvis over the bladder that feels like my bladder is being pulled out. Had an external neurectomy in Nov 2015 without relief. The only thing it did was cause more severe pain at the hip and create pain in my inner thigh. Haven’t been able to work in 5 years due to pain. Tired of narcotics that only make me sick.

  • LoriCx3

    Member
    April 9, 2016 at 12:57 am in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    By the way, I live in VA too-NRV.

  • LoriCx3

    Member
    April 8, 2016 at 9:39 pm in reply to: Inguinal Mesh Removal

    Inguinal Mesh Removal

    Thanks for the info. The dr I saw is Belyansky. Sounds like you saw him too. The only thing he said was that if he did a neurectomy that sometimes you can develop a bulge in the abdomen. He said that after he removed the mesh if in fact there is a hernia that he would not repair it but leave it open. Don’t know how I feel about that. It just makes me wonder if attempting to remove the mesh will cause even more pain in the long run then I have had for the past five years.

  • LoriCx3

    Member
    April 8, 2016 at 2:08 pm in reply to: Nerve complication question

    Nerve complication question

    KerryK- i’m not 100% sure either way. But I do know that there are nerves that stemmed from the lumbar region of the spine and come across the inguinal area in the front of the groin.