[LostNPain]

Thank you everyone for your responses. It has given me a lot to think about.
The doctor that offered the Phasix mesh has little experience with using that particular mesh. This doctor is very well known in the hernia surgery community and held in high regard.
I don’t really have any more options to go elsewhere. While I’m pleased that the mesh removal would be TAPP and robotic assisted, I’m disappointed that we aren’t going to investigate the cause of my pain before cutting the mesh out. Especially since the outcome is a gamble.

[LostNPain]

Thank you.
Repeat injections were not offered. I believe they wanted my relief to be longer lasting.
I have heard the doctors mention nerve ablation but we never went down that route. I want to speak with the new doctor before we decide on anything. I am hoping that he can find the actual cause of the pain so we can better decide the next step. The pain does not improve over time (it’s been a year). The pain is increasing along with its radius of pain. I believe that these temporary pain treatments (while appreciated) will only mask the root of the problem. I fully believe that something is wrong around/with the mesh and my pain will continue until the root problem is fixed.

Your comment about the tacks makes sense to me and is a good thing to consider. I’m sure my new doctor will cover these areas thoroughly.
I have mentioned to my original doctor several times that when I press on that area it feels like I’m pressing on a very sharp piece of glass. Rolling my finger across it / is excruciating. Pulling my skin with a flat hand is also painful. Repeated Squatting and exercise aggravates it to the point where it will throb and burn and stab me all night.

Thank you for giving me direction on the research for drg. I will do some reading tomorrow evening.

Thanks again.

[LostNPain]

I have low BMI and am very physically active. The mesh they used for my inguinal hernia was bard soft mesh also. I also have pain during and after exercise.

[LostNPain]

It was a couple sentences about back implants but no link.
I’m still in pain but I think the steroids are kicking in or something. There is a pain sharpness that has been dulled. DPT says I have symptoms from both ilioinguinal and genitofemoral nerves.
The exercises I can’t tell if they are working yet but I keep doing them.

[LostNPain]

Ok. One of my post got blocked. It says unapproved. Weird.

I was asking about implants in the back to block pain.

[LostNPain]

I am also wondering if anyone here has any experience with having an implant in their back for pain blocking? I forgot what they called the procedure.

[LostNPain]

Chaunce I really like your idea. I agree.

[LostNPain]

After examining me, she gave me exercises to help the ilioinguinal and genitofemoral nerves. She explained that the nerves can get stuck inside fascia (sp?). I’m scheduled for weekly appointments with her.
I was told that this (two nerves instead of one) might explain why only part of my pain was relieved from the injection.
I am back to work and still feeling lots of pain but I feel like we are moving in the right direction so it keeps me going. Lots of appointments in my calendar.
Ill keep this updated.

[LostNPain]

I’m not sure why I felt the stabbing during the procedure, she did use ultrasound and I could see what she was doing on the screen. The nurses and other doctors were rubbing my arms and trying to comfort me during the stabbing. In the beginning I could also see my intestines moving around on the bottom of the screen.

[LostNPain]

Hello.

It was an ilioinguinal block with steroid, guided by ultrasound.

A couple minutes after the doctor removed the needle I noticed a sudden heavy feeling rush into my upper leg.

After the procedure I was moved into a different room to get dressed.

I stood for a few moments to feel my body. There was a change with the pain but not in the way I expected.

It felt like one part of my pain was completely numb but another part still remained(but lesser) . I had difficulty picking a number for my pain level because of this.

I left the hospital and as the hours passed one side of the pain slowly increased until it was worse than before the procedure, and the other side remained numb.

2 days after procedure I still felt the pain but it seems to be very sporadic.

I can’t say that I’m pain free, or that the injection doesn’t work. But I do notice a change.

As each day goes by I feel like my pain is getting worse on one part but greatly decreasing on another.

Before the procedure I was able to control some of the pain by avoiding certain physical activities. Now, After the procedure I seem to have lost that control, as I’ll have moments of numbness followed by intense pain “flare ups” even while resting.

On the other hand, certain positions that used to cause severe stabbing pain no longer give me pain feedback.

It’s really confusing to me.

Before the procedure the doctor who gave me the injection sent me to their physical therapist. After examining me and having me do movements and tests, She showed me some strengthening exercises and mentioned something about nerve entrapment. She said that I had shut off some muscle activations due to prolonged fear of the pain and so parts of my body were disengaged and this caused great weakness in my glutes.

She sent me to a different physical therapist at the hospital who specializes in nerve entrapment and hernias. I am scheduled for weekly visits with this therapist.

We will not know for sure what exactly is causing the pain until I see the new doctor. I’ve never met him but I hear he is skilled with mesh complications and i have seen an abundance of positive feedback about him. I’ve been waiting for a while and still won’t see him until mid april.

My first visit at the pain clinic had me crying in relief. The doctor spent an hour with me explaining everything, answering my questions, examining me, taking notes, and offered various treatment plans. One option involves an implant in my back to block pain signals. (This was the first time I had ever heard of such a thing). She helped me get an appointment with one of their surgeons. She also didn’t try to pressure me into taking drugs which I really liked.

I felt genuinely cared for and that my pain was treated like a real thing.

So I don’t mind the wait because I feel like I’m in good hands.

[LostNPain]

Received a nerve block with steroid. Having physical therapy and counseling.
At first the procedure wasn’t painful but as the doctor shifted the needle I felt incredible stabbing sharp burning pain. It took all of my mental strength to hold still and to not push her hands off of me. I didn’t expect it to be so painful!
It didn’t last long though and I was out of there quickly, thankfully.

I am very sore where the needle went in. I have bruising and feel tender. The doctor and nurses were nice.

Ive been keeping a pain diary, as instructed. The first few hours I felt numb and heavy. Was told not to drive for the rest of the day. The pain gradually returned and now I feel more pain. I’m surprised that the block would do this. Is this normal?
It seems as though I have more than one source of pain and the block only works on one of them? It sounds strange but I can’t describe it any other way.

I’ll update as I continue treatment.

[LostNPain]

So far
ilioinguinal neuralgia. More investigation is expected to take place soon.

Will update if/when I get more info from the new surgeon.

[LostNPain]

I haven’t done much with my unit lately, it’s relaxing but I feel sore after and it kind of kills the point.

Regarding the fold. I was very close to losing my job due to pain and i begged my doctor to help me. My doctor suggested exploratory laparoscopy to check for a recurrent hernia. On our next visit I was told that the mesh looked perfect and to power through the pain.
I went home and read my medical report for the exploratory laparoscopy and my doctor wrote that my mesh was folded.
I asked for an MRI and was given a sports pelvic Mri and was told everything’s fine.

I will be going to a pain clinic soon. This whole experience has me feeling apprehensive though. I am expecting to be told for the hundredth time that there’s nothing found and nothing to be done.

This pain has been stretched out and ignored for so long that I am mentally and emotionally falling apart, I’m on the brink of losing my job and ready to give up on everything.

[LostNPain]

Also, how long did the nerve blocks last? What did it feel like?

[LostNPain]

Jnomesh thank you for sharing your story.
Hearing your story makes me feel not so alone with this, your experience sounds so similar to mine.
How did they decide to remove the mesh? Did you ask to have it done and they agreed to ? I can’t seem to get a path to resolvement.
After mesh removal are you able to exercise? Do do you believe that mesh removal improves the situation, makes it worse, or does it not change anything?

Do you know what causes a mesh to fold?
Lots of questions, my apologies. I have a lot to learn.

Thank you

[LostNPain]

I had laparoscopic inguinal hernia surgery with mesh and tacks. It took more than a month before I could do anything more than a granny shuffle due to pain. (Pain is always in my groin and crease ) It’s been ten months since surgery and I’m still in debilitating pain and have other issues, but I don’t think my case is usual.

[LostNPain]

Bye

.

[LostNPain]

Switched drs.