marcello71
Forum Replies Created
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Hernia forum
Yes I agree, for some reason it doesn’t show how many views each topic has anymore, which is a shame because one of my topics was about to reach 25-hundo baby!
It also doesn’t show dates anymore, just the topic name & who last posted…
Please bring back the old HT, the way it used to be, we loved it! (:
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top hwrnia in wisvonsin
So you went to Sarasota, FL I presume..? (Just wink if its a yes)
I will look for the book ‘beenthere’ thanks. My other question is about insurance though, I have WI state Medicaid & I wonder about trying to switch insurance just so I can go out of state for this like you did. Did you have Medicaid & switch to Medicare..? Did you opt out & pay for private a private insurance plan instead? Why did it take 2+ yrs for them to allow you to go out of state? I’m finding it just as hard to get the help I need paid for…
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Suffocation after Removal
This definitely scares me now since my lap placed mesh sits on top of both the genitofemoral & lateral cutaneous nerve branches with the ilioinguinal & iliohypogastric being further towards the surface…
If I have mesh removal(& neurectomies/neurolysis as I’m told is also necessary), Am I at risk of losing any motor function or having problems with my gait afterwards?(I had a really good gait too let me say, like a show dog or thoroughbred. I was one fine specimen before all this.)
Or are these all only sensory nerves..?
Btw I’m sry to hear what your going through ‘Mesh’. It sounds like ‘Master P’ doesn’t understand the full ramifications of trip neurectomies, if he didn’t tell you all this beforehand atleast.
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top hwrnia in wisvonsin
Thankyou for the reply ‘been there’. It is too low of a cap for most lawyers to want to handle but regardless I am not a litigous person & do not plan on trying to sue anyone(plus no amount of $ would make things better, I don’t care about $ all I care about is getting my health & life back)…
I understand you had a good outcome from your removal ‘been there’, but was your mesh lap or open placed?
I also see your hesitance to state who did the removal & although I am very interested in knowing, I respect your privacy. So you said it was one of 2 in Fl that would be either Yunis or Ramshaw. It would really help me to know another good outcome came from the surgeon I think you went to. If I ask, we can use code names if you’d like… Was it ‘Big Red’? Was it the one of those 2 surgeons that recently relocated from Fl? ‘The shaw’?(too obvious?).
Let’s try this, was your surgery done in celebration Florida or Daytona Beach Florida? -
parietex progrip removal, an exercise in futility?
I hope this doesn’t offend any other doctors, but I admire & sort of regard Dr David Chen as like the ‘Serpico’ of the hernia mesh industry since he never has any financial disclosures. I mean do other doctors at the conferences ever corner him like pacino saying to him: “Hey Dr Chen, when you don’t take money it makes the rest of us nervous…”? Lol, Only kidding. I’ve got loads of hernia mesh shtick at this point unfortunately(I did stand-up before all this so its my coping mechanism I guess).
Another symptom I still continue to have is the testicular pain w bruising. So when I see some of these Da Vinci videos where grape skin is peeled off & then sutured back down, I wonder how easy or realistic it is to delamimate or lyse the mesh off of the spermatic cord(testicular vessels & vas deferen) w the robot? I mean why are so many surgeons more willing to dissect, pull apart & de-nervate the spermatic cord w the robot rather then just removing the mesh off of it instead? Dr Towfigh I’ve seen your video of robotic spermatic cord lysis to treat testicular pain & I was blown away, I immediately thought “that’s it, that’s exactly what I & so many other guys w this issue need! Like the lion w the thorn in its paw.” It was quite compelling & I hope more surgeons start taking notice of how capable the robot can be for removal.
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top hwrnia in wisvonsin
Who in Kentucky? No one in Chicago? How many lap inguinal mesh removals does a surgeon need to perform before you would classify them as capable of something like mine?
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top hwrnia in wisvonsin
Hello, fellow mesh patient from Wisconsin…
Now unless I’m mistaken, I have found there to be no surgeons in WI with experience removing lap placed inguinal hernia mesh unless it was infected(flat mesh not plugs mind you).
I’ve seen Dr goldblatt who is a very nice guy & sincerely cares about his patient’s safety which you can tell by just meeting with him, but he haden’t removed my type of mesh before(I wish he had done even just one removal cause that was the only deal breaker there).
So I moved on to see Dr Greenberg who is also a nice guy but a little more wooden seeming personality-wise. He had only removed plugs or umbilical hernia mesh TAPP(no flat pre-peritoneal mesh), usually only when they were infected & only when he was replacing it with phasix for a trial I believe. He was no longer part of a trial at that time so… He sort of dismissed me with a suggested gluten intolerance, saying further that hes never had to remove inguinal mesh like mine before..?
I do believe however that both of these guys are great at putting the stuff in, but goldblatt has far more experience in years as a surgeon.
I hope this helps, please let me know of any removal surgeons in Wisconsin that I may have overlooked Dr Towfigh… -
parietex progrip removal, an exercise in futility?
Hi again Dr towfigh, your a very caring Dr to check in on my situation like this…
Unfortunately my systemic symptoms recently took a very drastic turn for the worse. About a week ago shooting pain in my left arm with alternating burning/numbness/pins & needles began which has now extended to other areas all over my body. It’s still mainly in my left arm but also now affects all other extremities as well, bad enough that my legs almost give out & I’m nearly too weak to walk at times when this hits me. It’s affecting me cognitively as well very strongly. I now realise I probably need all the mesh out in order to avert full blown autoimmune disease(theoretically proposed ofcourse) from completely destroying & ravaging my body at 31. And ofcourse I still look 3 months pregnant at times from umbilical area inflammation/swelling. (And here I was hoping to be married before I got pregnant, even if its with mesh (: if its a boy or a girl mesh I still don’t know though. Lol)I have met with both Rosey & Rammy at this point… Both were great & extremely competent when it comes to mesh removal. With Ramshaw being my most viable option at this point & having the most experience I believe.
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parietex progrip removal, an exercise in futility?
Thankyou beenthere for your input, Who did you end up having the removal with of those 3 surgeons you mentioned? I don’t think there is a PM on here but I would still very much like to get in touch with you by email or otherwise to share info since I am very close to this tough decision. Was your mesh put in lap or open? Sounds like you had a good outcome?
I was also wondering what the consensus is on Dr William Meyers in Philadelphia for lap inguinal mesh removal of my kind..? I ask because I am looking for removal w/o any more mesh being put back in.
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parietex progrip removal, an exercise in futility?
Thankyou for the help and guidance Dr Towfigh & Dr Earle, this website is truly a godsend to lost patients. In regard to the 2 surgeons mentioned, I have met with Dr goldblatt and he is a great, truly understanding & very competent surgeon however he’s never performed a laparoscopic mesh removal before unless for infection. I don’t believe Dr greenberg has either, unless infected ofcourse which is totally different. I am willing to have to drive atleast a few states distance for this, I just don’t know if flying across the country is an option for me at this point. I guess I really just need a surgeon who’s done atleast 10 of these & is located atleast in the Midwest hopefully(>14 hrs driving distance). What I’m wondering is, can any surgeon get all of the mesh out? It seems most just leave pieces behind where they’re hardest to get at but where they’re also causing most symptoms for the patient. So then would leaving pieces over the triangle of doom while removing mesh from all areas around it even help anything? They might as well call it the Bermuda Triangle of Doom for how few surgeons are willing to venture there…
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parietex progrip removal, an exercise in futility?
This is a repost to my original discussion, I’m sorry I must have deleted my first 2 posts somehow instead of editing them…
I had bi-lateral inguinal + umbilical hernia surgery with 3 pieces of mesh(2 pieces of parietex progrip in groin & 1 piece of symbotex composite in umbilical) implanted in Feb 2015. It all began from me lifting things for my mother in Oct 2014 when I became over exerted feeling like things had sunk downward a bit in my stomache which followed with over a week of constipation. After an N.P. examined me saying I had no hernias she then suggested imaging at the hospital if things didn’t improve. After a ct scan at the ER showed only 1 very small umbilical defect containing fat, the ER doc came in saying “they only see one in there but I felt an inguinal hernia too, its there trust me” so I was sent to a surgeon. The first I went to said, “you don’t have any hernias, come back if something pops out”. So I went for a second opinion with that surgeon saying, “you have four hernias and I can fix them for you”. I said “but the first surgeon said I had no hernias” so he printed out 4 slides of my ct scan where he circled the 4 hernias to convince me of his diagnosis. So being frightened of them worsening or popping out into my scrotum I agreed to him fixing them but since my mother has a vasculitis autoimmune disease(I vehemently denied allowing an implant for fear of rejection), I said “only use mesh if its absolutely necessary to fix the hernias, otherwise sew them up or do nothing if they’re small enough” to which he nodded ok. Anyway I had the surgery which he did lap tapp with me saying after, “so you used 3 pieces of mesh, those hernias were bad huh? I mean it was necessary then huh?” to which he replied “well it would of been necessary in the next 3-5 yrs probably, it was a preventative procedure” I was kinda shocked, having been led to believe there were definitely 4 hernias that needed fixing prior to the surgery. Since the operation I have had all sorts of complications from allergic/autoimmune(bloating, swelling, inflammation, etc.) to groin/testicular pain(between 2-8 out of 10 at times) as well as vascular issues with my genitals turning purple at times of pain & activity. This prompted me to get other opinions with numerous surgeons since the surgery saying, “I don’t see why he did the surgery in the first place, you had no real hernias”. Hearing this made me wonder if removal would be easier or more possible if there’s no hernias being held in by the mesh currently. So finally I am here to ask what the optimal timeframe is to attempt to remove this parietex progrip & is it even possible without me losing a testicle? Because of the Polylactic acid microgrips that take 18 months to dissolve, is it better to attempt removal sooner to prevent more tissue in-growth or later once the microgrips have dissolved? I also believe I may have a solution or idea to dissolving them quicker or de-laminating it easier so to speak from all the vital structures in the pre-peritoneal space(triangle of doom: epigastric/iliac vessels, triangle of pain: sperm cord/ilioinguinal & other nerves) and wish to have a surgeon confirm or deny its feasibility…
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parietex progrip removal, an exercise in futility?
The real reason I posted on here was to hopefully be referred to an experienced removal surgeon in my area of the country. I have 2 pieces(bi-lateral inguinal) of parietex progrip and 1 piece of symbotex composite umbilical mesh. Im experiencing trouble from all three pieces currently but only wish to have one side of the groin + umbilical piece removed for now. I’m in the Midwest in Wisconsin and I only know of Dr Jacobs(who sounds very competent & thorough but is in New York) and Dr Ramshaw(who is my first choice but is in transition currently). Is there anyone else who removes mesh laparoscopically(with atleast 30+ removals under their belt) that’s located in the Midwest or even in or near Wisconsin?
I also have another more realistic & innovative idea for freeing up the mesh by dissolving the tissue ingrowth to it in the pre-peritoneal space… This one is too good to share over the internet though(it actually involves chemistry & biology n’ stuff (: ), it could prove to be very lucrative if it works. I just need help finding the right surgeon to remove this stuff, then the recipe is theirs, lol.
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parietex progrip removal, an exercise in futility?
Thankyou for the response Dr towfigh(I am hoping to consult with you on removal in the future if all else fails). My symptoms before the surgery that sent me to the ER were just constipation & resulting pressure that got better before the surgery which I told him about, I said: “ya know I’m not constipated anymore or in any pain at all…”, he then gave me a physical exam with his response being: “ok looks like its time to get you into surgery”. This led me to believe that he saw something warranting surgery that I didn’t understand which I trusted since he was the surgeon. I maybe had the 1 tiny asymptomatic hernia at most but then again I’m no surgeon(all the other doctors & radiologists I’ve seen say I only had 1 very small umbilical defect as well). To answer your question, I had no real symptoms at the time of surgery and I agreed to the surgery purely based on his diagnosis & a fear of them getting worse. The only difference I felt after the surgery was foreign material left inside me(I.e. I didn’t feel as if any hernias or bulges had been fixed inside or out, everything was the same as before). I’ve also had a scan since the surgery that, aside from areas of identifiable mesh, is identical to the prior scan from before surgery with the same radiological findings.
>>All that being said, I don’t want to sound like I have a negative attitude or any bitterness at all. I don’t hold any grudge or anger towards my implanting surgeon, especially since I can’t say for sure what his intentions were or not. He still to his day tries to assure me that I did infact have 4 hernias. Maybe your right Dr towfigh maybe he meant prophylactically, but he used the words, “you have 4 hernias and I can fix them for you” so I don’t know how one could fix something prophylactically. However I also can’t diagnose myself and am not a doctor(no matter how often I pretend to be one & even ask my friends or family to call me doctor lol). And as far as I have heard mesh works just fine for many people that have hernias & that never experience any problems with it. At this point I am only interested in recovering my health & moving on with my life once it is removed.
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parietex progrip removal, an exercise in futility?
Thank you for your speedy reply, this website truly is incredible & very valuable to ailing patients. I have tried numerous NSAIDs and am currently on aleve(naproxen) daily as well as tramadol for pain but as I am only 30, I do not see leaving the mesh in working out for me in the long run. I do not blame the mesh at all for my situation as it does work great for so many, however I just completely didn’t need(or want) it to begin with. My focus now isent to blame anyone but just to try to regain my health & move on. My idea for easier removal(this hopefully will be seen by Dr towfigh as well for her input) came about when any surgeon I saw said that the only situation warranting removal is infection of the mesh because in that case(I’ve been told) bacteria & inflammatory fluid or pus collects around the mesh making it as easy as “slipping a tissue out of a Kleenex box”. So then couldn’t this be simulated with a non-infectious sanitizing liquid like a biological or antibiotic type fluid possibly? It may sound silly but I saw one of these videos where the pre-peritoneal space was swollen & blown up like a water balloon full of infectious fluid, so the surgeon slightly incised near the top so as not to let too much infectious fluid out, then he pulled the balled up mesh out drenched but completely de-laminated and free-floating. The surgeon then used a clear antibiotic type fluid to irrigate the space, filling it up just like the fluid before it had… What makes me feel its even more feasible is that polyester is hydrophillic & polylactic acid is metabolised by hydrolysis. So maybe even filling the pre-peritoneal space with a high water content sanitizing liquid then leaving it to soak with the patient anesthetised for 30 minutes could facilitate it being slipped out like a Kleenex just as easily. Completely theoretical & quite comical to a surgeon I bet, but I just thought what if?
Btw I see your a fellow U of A alum, go wildcats!