Good intentions
Forum Replies Created
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Actually, you have to click on one of the flags first, then the informative links will be available.
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quote routern7:are you sure Dr Muschaweck is there? I sent email and they said she left.
Apparently, maybe, she left to start something new. Somebody just posted about it. It looks very promising.
https://www.herniatalk.com/6229-inguinal-hernia-surgeons-london-uk
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quote Frank Chapman:I am curious if anyone here has experience with BioHernia?
The web site you linked was only just created, in 2018. Apparently, it’s not really clear what type of business it is. It seems to be a partnership of several surgeons.
https://biohernia.com/en-gb/about-us/
https://biohernia.com/en-gb/how-biohernia-works/
Somebody also recently posted that, apparently, Dr. Muschaweck had left her previous organization. Maybe she left to start this.
The web site is very impressive. It covers pretty much all of the issues often brought up when discussing hernia repair. The important links are at the bottom of the introductory page.
Very interested to hear how things turn out for you. Thanks for posting this.
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You can send messages directly to members of the site by clicking on their screen names to make sure that they see your topic. Otherwise you have to wait until they decide to get back on to the site, plus they have to open your topic when they do.
It seems odd that your doctor would not respect the opinion of a trained expert in radiology. The radiologist spent much time and effort learning to read images. Adhesions are a common problem for all forms of abdominal surgery.
The mesh shrinks over time so that alone, regardless of tack usage, could cause some discomfort. 4.3 cm = about 1 3/4″ so it’s not a huge piece of mesh though. 15 cm x 15 cm (~6 n x 6 in) is a common starting point for laparoscopic mesh implantation, cut to fit the space. I don’t think that have enough information to really determine if mesh removal is needed. A surgeon that actually does mesh removal would recognize the symptoms and be able to tell you more.
Good luck. Dr. Towfigh just posted her practice’s direct contact number in a separate post,if you want to contact her via her practice.
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Good luck jer. The healing process after mesh removal seems to take much longer than the healing after implantation. Probably because the tissues have been ravaged for many years by the mesh and the collagen types are messed up. Plus there is a lot more of it, in the wrong places.
I’ve found that letting things settle down completely while trying to get back in to shape helps a lot. Exercise, let things settle way down to a steady state, then start again. In other words, don’t try to push through to strength and health like you might with a normal injury. It’s a very slow process, at least in my case.
Can you share any details of what Dr. Brown found? It won’t be a surprise if everything looked “normal”. Take care.
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Hello Marjorie. I had a very similar experience to that of your son. I had bilateral TEP implantation of Bard Soft Mesh in December of 2014 by a well-respected experienced surgeon at a large well-known clinic, and eventually had the mesh removed at the end of 2017. It was uncomfortable from the beginning, with levels ranging from pain to just discomfort, even leading to penile dysfunction. More than just erectile. My surgeon’s response was very similar to your son’s surgeon’s response. A focus on recurrence, not pain.
Can you get copies of the medical records? They should be available from the facility where the repair was performed and/or the surgeon’s office. There is a very wide range of materials being used for mesh repair and many different techniques. There might be some clues there that will help define a path forward.
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The bump is getting smaller, which supports what the two surgeons told you. If he sutured the opening close there will probably always be a small bump there from where he pulled the edges together, a small healing ridge, or internal scar. Plus the sutures themselves. I can still feel a very small bump where a needle was inserted to deflate my peritoneum during TEP surgery. The single suture used to close the hole left a bump, smaller than a BB, which will probably be there forever.
It’s barely been two weeks, barely enough time for normal swelling to reduce. I’d say that you might be getting ahead of yourself. Beside that there’s not much to be done. If there is a defect allowing fat to extrude, then when you get more active the bump will get bigger. Then you’ll know more. The radiologist can only see the results of the hernia, which would be the mass of fat. They probably can’t see the detail that the defect has been closed. I don’t think that fat has enough structure to be pulled without coming apart. That’s why the surgeon left it behind. Minimal disruption.
Good luck.
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quote Good intentions:Another person on the same forum had open repair with mesh 8 years ago and said he is also very happy with it. Said it was “perfect”. Another weight lifter.
The person from the other forum posted some details on his procedure. Anyone in the southeast or willing to travel to Florida for a hernia repair should take note. I copied his post here, and added the link. It’s post #1388. I also posted a link to Dr. Kurland’s practice.
“To give everyone an 8 year status. My hernia repair is perfect. I had surgery August 2010 and 8 years later, I forgot that it even happened. I don’t come on the forum that often anymore, but every once in a while I get a private message, and I realize that it isn’t even on my mind anymore. The surgeon used a mesh and tied it to the bone. He allowed the mesh to be less than tight for what he normally does because he knew that I lift and he wanted the mesh to have the ability to flex or give just a little. I have not had any complications or anything. I am so glad that I had Dr. Brian Kurland in Fort Myers, FL. He knew exactly what he was doing. I asked him tons of questions before the surgery occurred. He recommended against the laparoscopic method because he wanted full access and view of open surgery method so that he can fine tune and get the mesh perfect, WHICH HE DID! If you have any more questions or anything you would want me to dive into deeper, let me know. I am glad to share any details with you since I had a 100% perfect experience. I even got stronger and hit PR’s afterwards. I am very lucky to have found Dr. Brian Kurland in Fort Myers, FL.”
https://forum.bodybuilding.com/showthread.php?t=133353003&page=47
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quote dog:I am thinking what if to do old school surgery but combine it with
Biological Mesh Implants …just in case ?There are so many materials out there, and so many possible ways to use them, but very little long-term follow-up on how well they actually work. It’s a dilemma.
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Dr. Muschaweck is still active in Germany. Her skills seem to fit your needs. She might have an explanation for your pain also. I think that she avoids using mesh if possible, and also removes it when appropriate. If I was in Europe she would be my starting point.
https://www.physioroom.com/experts/e…muschaweck.php
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I am not a medical doctor and have not had an umbilical hernia but the first thing that came to my mind was adhesions. Colonoscopy does not seem to be the common method of diagnosing adhesions though, so it’s not clear what your surgeon expects to find by that method.
Search small bowel or small intestine adhesion and you’ll find a lot to read. Good luck.
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quote dog:There is no evidence-derived basis for believing that the use of mesh is more responsible for chronic inflammation than biological mesh.
Did you copy that directly from the source? There is something wrong with the sentence structure since it basically compares “mesh” to “mesh”. The sentence does not really have any meaning.
Do you have the original link? It looks familiar.
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It sounds like you still had a seroma, or something has torn loose. If it gets exposed to outside infectious agents you could end up with a real problem, especially if they used mesh to repair the hernia. I would contact your surgeon immediately and keep the area clean. I’m not a doctor though so can’t say how critical things are for you. I would leave a message with his/her answering service right away and let them decide.
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Have you contacted Dr. Towfigh directly? A link to her practice is at the bottom of the Hernia Surgeons’ page. She might even take a look at your images.
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quote BobbyO:It has been 8 weeks since the corrective surgery. Do you think I should wait 3,4,5 months to let things heal more before going to another Dr.?
How would you know if the mesh should be removed?It probably depends on if the type of pain is different or the same. If it’s the same then the last surgery didn’t really do anything. So you’re really on the 2 year time-frame. I had two laparoscopy procedures within one month. There’s no reason to wait if the pain is the same.
That’s why I suggested finding a very experienced hernia repair surgeon. They will recognize the symptoms and won’t rely so much on the mechanized diagnostic tools, like imaging.
It sounds like the doctors you’ve seen don’t want to consider that the mesh could be the problem. I think that it’s best to have a surgeon that will consider all possibilities and choose the one that is best for you.
I am not a medical doctor, just a guy who had a by-the-book standard of care mesh repair that my body would not accept.
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Dr. Peter Billing of Eviva is also a good resource. He will respond to a well written description also and will remove mesh. He is the one that removed my mesh, he is in Shoreline WA.
https://www.evivamd.com/about-eviva/meet-our-physicians-providers/peter-s-billing
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The actual measured number is 10 – 16%. Here is a recent review of how to deal with chronic pain, linked below. But, since your pain is so specific you might want to choose more carefully. Has all of the mesh been removed? I mention this often in my posts but the training and the mantra today for the mainstream surgeons is that mesh is inert and any problems must be caused by something else. Even though it is known that the mesh fairly rapidly stiffens in to a boardy less flexible structure. It sounds like your surgeons are trying to “salvage” the mesh. That is a word that they actually use – salvage. The mesh is meant to be a permanent part of the body, so removing it is one of the last resorts, when maybe it should be the first.
Regardless of the reasons for the thought processes, I would at least get more opinions. Try to find a surgeon who has actually worked on a case like yours. It sounds like your two surgeons have just gone to the books and are telling you what they read there.
Here is some reasoning, in question form, for having all of the mesh removed – are there cases of injury where scar tissue alone was enough to justify either of the two options you described? Auto accidents, stab wounds,other types of surgery, etc. Because if you have all of the mesh removed that is what you will end up with. Scar tissue that will restructure and adjust to get back to its original form. That, to me, seems like the logical approach. Remove all of the foreign body that started the problem. Then consider drastic measures. The surgeons will want to try to solve all of the problem in one shot. It’s up to you to slow them down, to try to save your parts. Having an orchiectomy will probably affect you psychologically also. Complete mesh removal before an orchiectomy seems logical. It’s surprising that any surgeon would consider the orchiectomy alone, first.
Get more opinions. Send a message to Dr. William Brown at his practice. He will probably respond. Include your phone number. Don’t try to stay inside your insurance plan, be willing to travel. It’s the rest of your life.
I had two very large pieces of mesh removed and the only area that still gets sore is where a mesh fragment is. It’s been seven months and it’s stayed in the back of my mind that I will eventually have to get the last small piece removed. I can still feel it at times and don’t know if my body is going to adapt to it or not.
Good luck. Do more research. Your problem is not a “by the book” problem.
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I see now. He/she was probably referring to the Kugel technique, not the Kugel plug. I linked to Bard’s page below. The number of combinations possible for hernia repair is incredible, and apparently, none is significantly better than another.
I like to use Google Scholar to see if the person in question is still publishing. If they are then they are most likely on top of recent developments. I linked to Dr. Rosen’s results also. It looks like he favors laparoscopic implantation, but hasn’t published within the last few years. Still, researchers tend to stay up to date, as a matter of course.
Of course, you might be getting ahead of things. Knowing if you’ve had a hernia recurrence as opposed to just mesh pulling free is probably important. Chaunce1234 has a list of surgeons who will remove mesh. Search his past posts. I had mine removed by Dr. Peter Billing of Eviva in Shoreline, WA. Dr. Towfigh will remove mesh if necessary. She is the administrator of this site.
Some doctors will reply if you write them a latter or send an email. The more information you get the better.
https://scholar.google.co.uk/scholar?start=10&q=Michael+Rosen+hernia&hl=en&as_sdt=0,38
https://www.surgical.theclinics.com/article/S0039-6109(13)00084-4/abstract
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Your main concern, I think, should be that your doctor will immediately refer you to a surgeon, and the first impulse of the surgeon will be to repair it with whatever method in which they have received training. Once they are in there they might see other defects which will give reason to do more repair. The most common repair method today is mesh. It’s very possible that you end up with coverage of most of your lower abdomen with mesh, if you mention any symptoms of inguinal hernia, like twinges in the groins. I saw a surgeon for a very simple direct hernia, one side, and after surgery I had bilateral implantation of as much mesh as he could fit in to the space.
That would be extreme, I think, for an umbilical hernia, but the training today is that mesh is harmless if implanted correctly, therefore more is better, for prophylactic purposes. The path from consultation to surgery can be very fast and smooth, and comfortable. Hernia repair is a mainstay of many surgical practices due to the high volume. So take your time in making a decision. You will probably hear about how it could get bigger, and strangulation of bowel could occur, and how the procedure is an outpatient procedure with no hospital stay necessary. But the long-term effects should be your main concern.
I don’t have any advice on reducing the bulge. My direct hernia bulge was not reducible either once a certain amount of material got out. I think that if the defect is small the material that gets out can’t be pushed back once the peritoneum gets stretched out of shape.
Dr. Kang has posted on the site about non-mesh umbilical hernia repair. You might read some of his posts. Good luck.