Good intentions
Forum Replies Created
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Here is one more thing from that link. You have to click through the other links on their page to fully understand what they are.
“Since the development of the implantable synthetic mesh for strengthening the abdominal wall, the mesh-free procedures are only used for children and in some special cases.’
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quote Fawaz:by the way I have done with same above operation repair with mesh in right inguinal and it is ok and there is NO burning pain as per the umbilical site
I would find out the type of material used for the first repair to see if there is a difference. Compare the operation that worked with the one that is not.
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It looks like some sort of cooperative. The page has links all the way back to the big “Guidelines” meeting set up by Herniasurge. See the link to the Guidelines at the bottom of the first page in your link. The Herniamed page that they link to is sponsored by the major mesh makers, you can see them all at the bottom of the Herniamed page. The “Herniacenter Switzerland” seems to be a mesh-centered hernia repair house. Everything about them says “mesh”.
It looks like there is also a “registry” and survey effort similar to the AHSQC. See the bottom of the first page of my second link to see the “HQAS” description. “If you are interested in participating in the Herniamed Quality Assurance Study please register here:”
Fascinating how the Herniasurge effort is growing. It seems very powerful. All sponsored by the device makers.
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quote Dee:I’ve had a no mesh repair twice now, the thought of more surgery is alarming, why does this keep happening and how can I avoid it happening again.
Who did the first two repairs?
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Dr. Muschaweck has been repairing professional athletes, many soccer players, for many years. I forget to mention her because she is based in Germany.
Here is a sample of old information and new. Soccer might be one of the most demanding sports as far as core strength is concerned.
https://www.theguardian.com/football/2007/sep/28/newsstory.sport2
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Here is another much more recent article. It might the best I have seen as far as addressing all of the issues commonly discussed on this forum. Dr. Towfigh participates. In the end it still comes down to collecting relevant information. Degraded quality of life is the reason that people see their doctors. We are not machines or livestock.
Sorry if I my other post offended so much that you couldn’t release it. But you can see in this professionally written article, the same things that I wrote about. We need useful data with numbers. Thank you.
https://www.generalsurgerynews.com/I…B8C3C8A9101426
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quote drtowfigh:See pinned post re AHSQC. It’s the only effort in US to get longterm mesh specific and repair specific data. We need more surgeons to participate. Plus we need patients to log in their longterm data.
danish and Swedish and German registries are pretty robust for longterm data and they publish their results.The effort is there, apparently, but where are the results that a layperson can use? There is nothing useful to a patient doing research.
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Click “cancel” and you should be able to read this article, below. It’s fascinating and frightening to see how inconsistent the field is. There is no measurement or tracking of results. Note also the recognition of the failure of the FDA”s oversight/regulatory role. The article is from 2016, but not much has changed. Government oversight has certainly gotten worse, considering the overall state of things.
https://www.generalsurgerynews.com/A…rticleID=34826
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Dr. Brown uses a non-mesh repair method on professional athletes. They seem to keep coming to him, I assume that the results are good. [USER=”2580″]DrBrown[/USER]
One major problem with trying to choose the best method of repair is that there is no reliable long-term data available to the public. No way to know if “majority” means 75% or 99%. Or what the bad results are, life-changing pain or just discomfort.
At least one well-known hernia repair specialist, Dr. Heniford, has recognized this and called for a true registry of products (not a pseudo-registry like Ethicon’s) that would track real-world long-term results of each product type. As far as I can tell the effort got no traction at all. The device makers are not interested in knowing that their products are good, just that they keep selling at a good rate with low lawsuit payments, I assume. It’s just the reality of our market system. “Charge what the market will allow and caveat emptor are the basics of business in America.
I just found a recent article quoting Dr. Heniford. It looks like he has climbed back on to the mesh wagon, with vague terms about long-term outcomes. Disappointing, But he says “our outcomes” not patient outcomes. Fighting the “trend” with words, communication, instead of real data. The pressure to conform must be incredible.
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quote Alephy:Did you have a mesh repair in the end? what went wrong if I may ask?
cshelter has posted quite a bit about his situation. You can click on his name while you’re logged in and see all of his past posts. Good luck. [USER=”3125″]Alephy[/USER]
https://www.herniatalk.com/member/3118-cshelter
By the way, if you’ve researched this far you should keep going, in to more detail about the different types of mesh. “Mesh” is a very vague catch-all term used to cover everything from absorbable materials to permanent synthetic polymers. In the early days the “mesh” was made of metal. It is a lot of work and difficult to understand but even most doctors just use whatever mesh their purchasing agents have made a deal for. “Mesh” is a product, sold just like any other commercially available product, with sales people and marketing professionals behind every one of them.
Here is a list of many examples of “mesh”. https://www.herniatalk.com/13873-types-of-mesh-and-their-manufacturers
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Here is another one. You can see that people are still coming up with new ideas and driving them to market. Imagine the chunk of mesh and body tissue that is formed.
http://www.angiomedical.com/pdf/freedominguinal.pdf
https://forum.bodybuilding.com/showt…353003&page=44
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I am 99% certain that I forced a hernia upon myself by trying to play soccer through back pain. I found that I could avoid the back pain by using the Valsalva maneuver to tighten my core muscles. I’ve seen accounts from other people who reported getting a hernia just by twisting backward in their chair to pick up a dropped pencil. The weak area in the muscle wall is present in everyone, as I understand things, due to the nature of how the muscles come together. So, if things come together “right”, with high internal pressure and force on that weak area, the weal area can give way.
But, in your case, a strained or stretched area could cause pain, but maybe, hopefully, without the intestine contents being pushed through. You really don’t want to test the area by stressing git to see if it’s broken. Let it heal and get stronger if it can. Once the muscle wall is breached it won’t fix itself. Don’t try to push to see if there’s a problem. Do nothing and hope it strengthens and goes away.
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I found that tracking my activities and the physical effects that followed helped me draw a correlation between the two. In other words, keep a log of your activities and how you feel. Then you can see what causes problems and what doesn’t. I found that it typically took two days for effects of physical activity to build in and three to four days for them to go away. Your body is not like it used to be.
I have also found that change is slow, both with the mesh repair and after mesh removal. It has taken me two years to get to where I don’t feel soreness or pain at the previous location of the mesh after vigorous physical activity. The body acts rapidly to stop damage, allowing you to function and survive, but very slowly to remodel the tissues to their original plan. I would assume that this is true for suture-based repairs also. Healing muscle tissue/fascia is slow.
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Hello Dr. Towfigh. Overall, the design of the site seems effective. There is a spot for “stickies” aka pinned topics. The path for starting a new topic, or thread, is clear. The message function and how to use it is clear. When the site was working right, new people were joining and meaningful conversations were occurring.
The major problem with the site has been the arbitrary destruction of people’s posts. I’m not sure that you realize how damaging that was. Some of us put quite a bit of time and effort in to considering a person’s problem and writing it in to a post to give them some useful information, only to have it completely wiped out, gone forever. I suspect that some of the more helpful people, like Chaunce1234, have stopped contributing because of this waste.
In addition to a person’s work being destroyed when they tried to post it, the message function stopped working. I still have empty boxes in my Message center, both from the people who tried to contact me and my reply to let them now that I could not see their message.
So, I think that making the site stable and sensible will be a dramatic improvement. If a post violates a rule, please make it so that the content of the post is saved, and a sensible error message is generated. It’s the destruction of people’s work that has hurt the site the most, I think.
As many have already said this site is a great resource, both for hernia patients seeking help , and patients who are experiencing problems. I think that it could also be a great resource for doctors if they were aware of it and not afraid to read about bad things that are happening in the field. The site should really have many more views than it does.
Clicking “Post Reply” now and hoping. I’ve saved my work, just in case.
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[USER=”2580″]DrBrown[/USER]
[USER=”2019″]drkang[/USER]
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quote cshelter:The result was I had a recurrence. And a large incisional hernia that extended to my iliac crest.
Hello [USER=”3118″]cshelter[/USER] I read your post and can not tell if you had a 2nd surgery that resulted in a hernia, or are waiting to have a 2nd surgery to fix a recurrent hernia, and, maybe, a new incisional hernia.
If you’ve “just” had a recurrence from a failed Desarda procedure that would be different than if you have a new hernia. Dr. Brown and Dr. Kang are well-versed in the methods of suture-based repairs. Maybe they can help. If you could give a clear summary of your condition now, that would help. Good luck.
[USER=”2019″]drkang[/USER]
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Testing.
Could you get the details of the type of mesh that was used? They might not all be the same.
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quote dmpain:H
I am 49 and in good shape. Historically very active. Swim, bike, occasional run, family hiking, etc. I had laparoscopic bilateral inguinal hernia repair with mesh in 2016. Small but painful hernia on the left, some pain on the right but no obvious hernia. My surgeon sold me on bilateral mesh based on the argument that one surgery would fix and prevent the potential for all future hernias (sigh).Any thoughts on my symptoms from Drs. and members? How reasonable are the next steps suggested by my local surgeon? Should I go back to considering sports hernia? Should I be reaching out to someone with more experience with complications from hernia surgery like Dr. David Earle (located a couple hours away) for what would now be a third (or fourth) opinion? Other questions I should be asking?
Happy New Year to all and thank you in advance.
Your “sigh” indicates that you’ve learned about how the industry works. You should reach out to the doctors that understand mesh problems AND have removed mesh. Dr. Earle has commented in the past in support of mesh. I think that he would probably sound very much like your current surgeon. You can search for his last few comments on the site. His comments on Atrium’s mesh product are also used in their marketing literature.
Dr. Belyansky, Dr. Brown, Dr. Billing and others have much experience in removing mesh and have probably met many patient s like yourself. Your situation, from start to now, sounds very much like mine, and others. The source of the problem can not be seen by imaging or any other technique, especially if it is a broad pain/discomfort, not localized to a nerve area. It’s probably just the mesh itself.
Here is what I think is the last contribution by Dr. Earle on the site. Good luck.
https://www.herniatalk.com/9814-american-senator-rand-paul-to-have-shouldice-surgery-in-canada
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Hello [USER=”3115″]Alemazz94[/USER] I just wrote a post that should appear soon. Good luck.
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Hello [USER=”3115″]Alemazz94[/USER] I just wrote a post that should appear soon. In the meantime, here is something to read that might help you. Your “wound” is not done changing, not fully healed. Good luck.