SFIrishGuy
Forum Replies Created
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Eva,
Good evening. I am wondering if you could give us an update on how your husband feels now? And if possible, and for others maybe a brief timeline of how your husband faired as the months past and what he felt and how it Changed. 🙂
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All,
good morning. First I want to thank everyone who took the time to reply here with their concerns and their opinions. I realize that this comes from a place of caring and so I see firsthand that the community here very much wants the best for each other. I try to direct message many of you but unfortunately, the website is currently having critical failures and I’m unable to contact you directly. I’m gonna do my best to respond here.
My only hope here was to find participants who’ve had a fail show dice and to gather what had happened with them afterwards. As good intentions indicated I am in a dangerous and precarious situation but I’ve done the best I can with the surgeons that I’ve met with to move forward. I wanna first say that I do not, nor does the current surgeon discount individuals who are having issues with mesh as it was explained to me there are situations where that is constituted. I should note here that yes I had mesh placed in and removed but I never had a mesh issue to begin with. Many may know or some may not but for context, I had a right inguinal hernia surgery with mesh almost 10 years ago and never had any issues stemming from that mesh implant which would indicate that I had any issue. I was never diagnosed with fever or soreness in the groin or had any kind of autoimmune ailments. When I had the corrective surgery a few years on the left side yes there was a pro grip mesh placed in and yet I was diagnosed in the beginning but I never had that additional ailment and many have indicated. The soreness which was located on the hip area was due to collective areas of scar tissue or to the mesh being attached to the spermatic cord. This lends itself to being a more physiological or anatomical issue more than any kind of autoimmune issue. I never ran a fever or had any other outlying issues. Even the director of the pain modality clinic that I visited said there is nothing he could do for me as this is more a anatomical and physiological issue based upon all the labs and the images.
I’m gonna try to outline some bullets below based on some of the questions above.
– yes indeed I had many labs that were done for last two years after the initial first surgery and after the shoulder surgery which included blood work, labs and many radiology reports. there didn’t appear to be any kind of poison or anything that would indicate an issue with the mesh. Yes I had soreness but this is due to the failed surgery and technique from the surgeons more than from the mesh. Radiology images indicated that both the previous mesh and with shouldice was unstable and not at an even curve which was placing pressure and the groin area which is why i’m feeling pain throughout my nerves. My current Doctor Who’s an expert and leader in the field of pain management also with alternative measures with hernia surgery showed me quite clearly on images that were done either with Kaiser and with her own request that there were a lot of built up scar tissue from surgeries that she wishes to remove and that their surgeries themselves were unstable. I even went so far afterwards to request a patch test with a few of the available mesh products and I did not react to any of them. As indicated from a current surgeon I never seem to have had a mesh issue to begin with.– pops and clicks have been equated currently to the scar tissue that is formed in around the surgeries and other removal from the intestines pressing against them. My hope is that with the current surgeon she will be removing most of scar tissue to best help me out.
– other than the imagery from the radiology reports indicating that there is a failed or unstable shouldice surgery I know that it actually failed as I felt it ripped open one day. I had to go off how I feel with my body and I know that right now it is unstable and I feel every day the popping through the open area pressing upon my groin which is very painful. As it has been explained to me going through the front end and ripping open the shouldice repair is too dangerous as it would compromise nerves themselves. As it hasn’t explained to me the best option is it going through the back end which is relatively lower risk and patch it up to create a more secure repair. Minimanual observations and injections were done with the third surgeon which indicated that there is no permanent nerve damage which is a good thing and there could be hope to help me.
– yes getting various opinions is vital but I don’t have years and years to spend and money to fly across the world and the United states for countless opinions. As I found out many surgeons I have a 6 to 8 month waiting list just to actually have consultations let alone waiting on a list for surgery itself. I was able to be seen by a leader in the field who after meeting many times has shown me the professionalism and technique that many of my previous consultations from doctors were missing. She was able to explain to me in detail and through the imagery what was going on and I believe that this was the best course go forward with.
I appreciate everyone’s time reading this and I am not here to negate anyone’s experience with mesh at all. But at this point I’m left with either living with the increased pain and an unstable repair that is ripping open every day or having the best mitigation possible.
I would like to message some of you including good intentions but like I said earlier I’m unable to as the website is currently having some issues. Regardless at anyone’s opinion on the matter i’m hoping that i can have everyones hopes and wishes with this journey.
Thank you
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I had meant he studied under dr Chen. Honestly my doctor says he never has patient like me and doesn’t know how to help. I’m scared.
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Hello everyone,
I just wanted to get some updates. So I am 6+ months post operation and still dealing with pain recovery every day. I have a seeing a physical therapist for pelvic floor the last three months to very little avail. That has been some minor improvements, I really have to work on manual therapy and if I physical therapist is your son relief. I think what it comes down to is that your brain and your body are getting used to the new anatomy that will take some time. That’s what my physical therapist and my surgeon keep telling me and I believe them. The main issue I’m dealing with that bothers me is that my gentrofemral and spermatic cord seem to be very inflamed. Most days I feel a kind of tickling/itchiness on my left testicle and that radiates through my pelvic floor. They’ll be some pain from time to time so she when I get out the shower or bend over to tie my shoe. There is some pops and clicks still happen but I believe that it’s because of the surgery site.
I say I’m about 30-40% better from when I first had initial surgery.
My surgeon thinks that the cord got strangulated somewhat when he created the opening flap from where sticks out from the fascia. So far hasn’t loosened up but maybe with more therapy or some time it will. The rest of some pain in my left testicle so she wants it down or I press on it
All choice I have is move forward and hopefully I do better. I will be talking to my surgeon about nerve blocks and possible other mediation methods to help with this in the future.
If anybody with experience with this post operation feel free to leave your comments and advice below.
Thank you.
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Thunder rose,
Still living in pain and discomfort. I get worse by the day I feel. I’m at my wits end. This shouldice procedure was supposed to be a miracle with small percentages of people who don’t respond. And I end up worse than I was with the mesh. I regret ever having the Initial surgery. No I feel I have more pain daily than with the mesh. Tired. I had a CAT scan with no findings. They sent me to a pelvic floor PT and I feel no relief only more pain. I had X-ray and saw an Orthopedic with no Impingement findings. I suffer more and hate life more than ever. And no doctor I’ve seen or specialist seem to help or know what they are talking about. And I will
Not go through another surgery. I give up -
Good intentions,
Thank you for getting back to me. I appreciate the resources that you listed. I will read the website and reach out to the Medical group for free orientation if I feel this is right got me. I’m definitely at my wits end and tired of seeing some of the doctors here don’t know what I’m going through even help me. My shoulice surgeon doesn’t even know how to help me at this point and is taking a week to talk to other colleagues how best to test me and help me.
All I know is I’m having similar or same difficulties for when I had a mesh compared to my post surgery Shouldice operation. My nerves are inflamed and my entire groin area, hip and knee crack constant. I’ve been complaining about this for over a year with my medical group abs countless doctors I’m just sick abs tired. Why so hard to get diagnosed correctly. I should not be feeling this way, I should be feeling better reaping the rewards of this very delicate but advance procedure. And it’s just it’s so hard to see others who say they feel 50% to 100% better within weeks and I’m feeling worse after Shouldice repair.
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This reply was modified 4 years, 2 months ago by SFIrishGuy.
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This reply was modified 4 years, 2 months ago by
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Good intentions-
I had a direct hernia, left iluignal. 90% of the mesh was removed, they had to leave 10% behind which had adhered itself too deeply to my spermatic cord. Pelvic and groin pops and click gets worse and worse everyday. And my geniotfemerol is way inflamed and send pulsating irritation and sometimes pain through my groin and my male part. It’s horrible, and I just want this to work and feel better. Recently I attended a talk put on by Dr Towfigh on We will discuss hip labral tears, femoroacetabular impingement, arthritis, dysplasia, iliopsoas impingement syndrome and wonder if I have this. I have had these pops and clicks since the mesh was placed in my body so wonder if th mesh coud have originally irritated any of those ligiments and I stil have it which is placing more pressure on my nerves. This is all preventing me from feeling any benefit from the shoudlice.
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Dr Towfrigh, you and I have spoken since last year when I had the mesh implanted 08/19 and have had undiagnosed complications as this. I had all these pops and clicks resonating from my groin area after surgery
It never got resolved. I had the mesh removed 6 weeks ago and I was fine the first 2 weeks the popping and clicking has come back. I’m very frustrated and feeling that I want to give up. My doctor says to give the tissue repair time but I’m afraid I won’t. I think the original surgery caused this inflammation which lead to this. How do I best address this with my doctor with kaiser permanent to get checked for this? Would this be indicated on auto immune marker tests. I’m looking for relief and to finally feel better and I’m not even after the shouldice procedure?
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Dr Towfigh,
Thank you for the response. That is the issue with KP I cant qualify experience or review. Dr Nguyen is great and has been so kind and accommodating. I am just nervous because I am having trust issues again with Kaiser from how they handled this entire thing, proving to them since week 4 i was having issues. Now my mesh is adhered to my spermatic cord and Im scared.
Dr Brown has been nothing short of amazing with his knowledge and care. He knows his stuff , but being out of network will cost and I have went to the Kaiser board to ask them to pay so I could get this done now in the age of COVID and they denied my request. Plus its alot of money.
I don’t know where to go.
SFIrishGuy
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Good intentions,
One of the issues is I am a hugely active person, exercising everyday so it is hard to moderate for sure. So I am hoping that a shouldice procedure would be a great way to get this poisoned mesh out of me.
Its all about finding the right doctor where I wont lose all my savings as well.
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Good Intentions,
Thank you for the reply. I know it is hard for others and Doctors to correlate the numbing to the surgery but I know it is related. I feel it can be the mesh strangulating my insides somehow or creating pressure against something. I know Alphea, whom responded to this thread as well that it could be a Fascia. I have never heard of a fascia and this has not brought up yet in any doctor visit I have had but will mention this next time I have a doctors visit. Everything in the world is in a state of emergency due to the Covid 19 epidemic so I don’t know if this will delay my journey further.
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To good intentions,
Thank you for taking the time to respond to my thread. You’ve always been very helpful when I’ve actually ask questions on the forms here on Hernia Talk. As you know I have been suffering from a mesh hernia repair back in August 2019 and have been suffering ever sense. Foolishly I trusted the medical system and my hospital before for the right doctor and I don’t wanna make the same mistake twice since I didn’t do my research prior to going in. Right now I’m trying to find the right doctor to do a mash removal and hernia repair so hopefully I can have the pain Lee subside. I have found numerous articles and information on Dr. Brown whom I have an appointment with in two weeks the only thing is that he’s out of network. But I’ll have to work with that moving forward if I choose Dr. Brown. Dr Nguyen has been great and informative to me the only thing is I can’t find information on him online to his qualifications or satisfaction from other patients which is making me a little nervous. I seem to really want to have the feedback from the hernia community so I don’t know if I should move forward.
I still suffer every day from pain in my groin to tingling sensations numbing of my left leg to pain in my left foot. It makes me very nervous since all the doctors I’ve talked to including Dr. Brown can’t seem to find a correlation between a hernia mesh and any loss of feeling in my leg. This is just a scary time for me right now.
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To good intentions,
Thank you for taking the time to respond to my thread. You’ve always been very helpful when I’ve actually ask questions on the forms here on Hernia Talk. As you know I have been suffering from a mesh hernia repair back in August 2019 and have been suffering ever sense. Foolishly I trusted the medical system and my hospital before for the right doctor and I don’t wanna make the same mistake twice since I didn’t do my research prior to going in. Right now I’m trying to find the right doctor to do a mash removal and hernia repair so hopefully I can have the pain Lee subside. I have found numerous articles and information on Dr. Brown whom I have an appointment with in two weeks the only thing is that he’s out of network. But I’ll have to work with that moving forward if I choose Dr. Brown. Dr Nguyen has been great and informative to me the only thing is I can’t find information on him online to his qualifications or satisfaction from other patients which is making me a little nervous. I seem to really want to have the feedback from the hernia community so I don’t know if I should move forward.
I still suffer every day from pain in my groin to tingling sensations numbing of my left leg to pain in my left foot. It makes me very nervous since all the doctors I’ve talked to including Dr. Brown can’t seem to find a correlation between a hernia mesh and any loss of feeling in my leg. This is just a scary time for me right now.
Joshua -
jkirby,
Good evening. It was kinda a miracle that I found your post tonight. I myself are looking for another surgeon to correct a left inguinal mesh surgery I had back in August 2019. As well I am in talks with Dr. Brown who I am making arrangements to visit in the next week or so to discuss a non-mesh hernia repair. The first surgery did not go as planned and has been having complications a pain that has not subsided since the surgery. With the trauma I have had I am looking for someone who is an expert, who will be sensitive to the possible surgery and be the right fit for me. Seeing your post I have some hope that dr. Brown may be a good fit, and I look forward to hearing further updates so I can make that decision.
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I had my left inguinal hernia repair 5 months ago and I have been suffering from lower back pain often now.
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To deeoeraclea,
From what I have gathered from speaking with my doctor and other specialists non-mesh repair has to be done non-lapro, and even with removal that is generally how it appears to be done.
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Good intentions,
I think I follow what you are saying. It’s all a lot and one of pulled in so many different directions.
I did reach out to dr Towfigh for other recommendations. I’m not traveling to Canada or overseas for this and I don’t want to break the bank. I have spoken to dr browns office and it seems promising, but out of pocket it is expensive. I am almost to my open enrollment with my company and with the mess kaiser put me in with this I may go with blue cross so hopefully it won’t cost me my savings. Kaiser has been so bad.
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Good intentions,
I am willing to travel. My parents love in Seattle. Are these the only pros in the business on the west coast side? And whom is the dr name in Seattle? Are they pros in non-mesh repair?
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gf1701,
sounds like you are going through similar situation. Would you mind sharing with me if you are having the same issues that I have documented earlier and have you had this done with Kaiser. What methods are using to get by.
quite honestly I don’t know what I’m going to do. I’m kind of stuck right now at Kaiser Permanente until my open a Roman with my company where I might be able to choose another provider I’m kind of stuck right now at Kaiser Permanente until my open enrollment with my company where I might be able to choose another provider. Right now I’m going through the pain modality clinic to Kaiser to work with them on pain management. However with the therapy and the pain injections nothing has worked. Daily I am actually go from better or worse depending on the hour. I still have tingling popping burning sensations I keep hoping this will get better as other people say that it will but it seems like it’s so far off.
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And no I had no mesh that was adhered to my pelvic bones.