Alephy
Forum Replies Created
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I agree with you @Momof4…I really find it disconcerting that so many docs report wrong facts or numbers….what’s wrong with stating what is known and letting the patient know the possible risks? This is incidentally why patients with problems after surgery get angry,at least from what I read here…the other really annoying thing is that some doctors get angry as soon as you start asking too many questions!
Btw about the watchful waiting:one doc told me it’s fine to wait,another that it’s not recommended anymore, yet another that I can certainly wait few months…all this while happily taking my money -
Well, here I am re-evaluating watchful waiting…it seems it is not so easy to get 1) a non mesh surgeon and/or 2) one that is covered by my insurance.
I have been told that the smaller the hernia the better for a non mesh repair: I wish I had been told that one can indeed get a non mesh repair without the surgeon ultimately deciding for a mesh during surgery..So basically I don’t see the point in getting a mesh now unless it is really an emergency, in which case they will most certainly use a mesh anyway…
The question is: do doctors see or have a feeling how things will change in say 10 years from now?
How much of the long term problems related to the mesh goes down to the skill of the surgeon do you think?
(one site in the UK stated that all the problems with mesh are due to the surgeon not being skilled enough…which goes against my understanding of what could go wrong with the design of the implant itself.material etc etc) -
I am just wondering, will the procedure/method developed by Dr. Kang eventually be showed to other surgeons and possibily adopted by others worldwide? Same question goes with the Dr. Muschaweck’s method, which is available in Germany at few places…
I would think this should have happened already….or there is simply no interest in hospitals in Europe/US to adopt something new that does not require bleeding edge hardware (laparoscopy)? -
Indeed! Never smoked and I have perfect weight and exercise regularly! ☺
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If I had to believe what the doctors told me about mesh I would have one in me even without a hernia!…jokes apart the body is most definitely not a set of boxes isolated one from another…
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Do you follow a special diet? Did You stop exercising because of the pain?
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I find outrageous that some surgeons would cut the nerves no matter what as a precaution…
I think the problem is many people end up having an hernia surgery and the volume of patients and the associated cost are the two main factors that funnel inadequate doctors into the surgery room…also consider the evil tendency of considering only one side of the coin and not the other ie no pain so it’s good, or no recurrence so it’s good…if it was a car you could opt out or choose a different one they would be bust in 1 month -
Yes I agree 100% with good intentions! Disrupt in any way the core and you will have major mobility problems…the fascia here plays an important role too (in fact even without a mesh just cutting the fascia can lead to problems I think)…that part of the body is just a perfect clockwork that requires infinite precision and skills to be handled! It’s not routine surgery…
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I think the best way to avoid a recurrence is to remain fit and slim…especially after a certain age your training schedule must include exercises aimed at keeping strength and elasticity of the muscles and fascia…I also would think twice before touching the nerves in a permanent way (I am surprised a surgeon would suggest this from the start). Btw reading about your original surgery I would not call that an example of a good health system: you were not in the loop on the procedure before or after and you weren’t told about the risks or complications…
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Many sea animals end up with their bodies full of plastic and they eventually die in pain….it seems we can include ourselves in this:(
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Yes I am really surprised that our ability to see inside the human body is limited still in many ways…🤔
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My take after reading about hernias and this forum is that the gold standard refers to a world of cost cutting where health is health insurance based…if money was less of an issue the gold standard would be different.
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I wonder, can a lipoma be assessed before surgery, and if so are they treated even if not painful or in this case they are left alone?
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I saw an interesting documentary about the human fascia…it is all connected and often its disruption is the cause for lower back pain! Apparently the healing of the fascia is faster with movement ie the fascia is deeply linked to the body moving…and every movement is transmitted through the fascia to the whole body… I now believe that the fascia with an hernia can heal albeit it’s maybe uncommon
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Can a lipoma present with also a lump like an inguinal hernia? What is the treatment for a lipoma (or what should it be,I am pretty sure the average surgeon would put a mesh for that too)?
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I sent an email to the hernia center in Munich but they never replied back…you are considering going there?
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I am with you 100%! This is the problem ie doctors and surgeons do not see the whole body but just their bit…they may work together but in a assembly line fashion. Surgery is deemed successful if the patient doesn’t go back to the surgeon….never mind if they have to be followed for chronic pain by another doctor for the rest of their lives….I bet if your surgeon were required to follow you after the surgery in case of complications the whole process would be very different….the main point of hernia surgery is avoiding a recurrence….recurrence recurrence recurrence…divide and conquer cam lead to catastrophe in medicine
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I would love to hear about at least one mesh which turned out to be at least okish, or not too bad…all this mess will result in people completely distrusting both the doctors and the medical industry!
Can at least a doctor tell me on what basis they decide to adopt a mesh at the beginning?? based on the manufacturer’s promises? …I find really disturbing that the “trials” on chronic pain/inflammation/complications with this or that mesh are done by single surgeons who compare the outcome on their patients…
As many have said I do not understand the difference between a drug acceptance process and a mesh (I mean, it should be a similar one)…and to think that doctors also get angry when one asks “too many questions”:) (or 🙁 -
Well I see your point….but as I was offered only mesh I thought I would try and be honest and explain why I think a mesh might not work for me and that I already spoke to other doctors about it…I guess I should have thought differently. Incidentally the first surgeon was just a big mistake as clearly the last person you want to trust your health to. The second one is clearly an expert and the third one impressed me also positively before turning very rude and offended….things as they are I will probably stay put and watch it until I really have to or the medical community puts some real science into the IH surgery. Besides I don’t have the money to try and find a good doctor out of the golden standards…and my health insurance doesn’t allow travelling abroad….
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@PeterC Indeed! I guess something positive out of the hernia nightmare might come after all in the form of a better understanding of my body (instead of a major physical set back and depression)…
When I think about my past injuries at the knees I see some similarities with the hernia injury: back then I could hardly walk and the knee pain was very dominant in all I did; and of course the usual response from doctors was SURGERY! It took me more than a year to get back to where I was and 3 years afterwards my mobility was far superior.
I guess it is never black and white and more often than not we should never underestimate what the body (meaning we ourselves) can do. And if I may say so, in the process of healing we learn tremendously, not so much when we “delegate” the “recovery” to a surgeon ..
ps: of course sometimes the body cannot do it alone, what I am saying is that “A occurs 90% of the times” does NOT mean that A is true…modern medicine ought to be very curious about the remaining 10% IMHO