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  • idoncov

    Member
    November 21, 2021 at 2:06 pm in reply to: “Bubbling” sensation around hernia – indicative of intestine?

    The bubbling sensation is likely due to difficulty in ‘matter’ passing through the colon. It’s my opinion that this restriction is due to the internal scar tissue that develops in the area after surgery. That newly formed scar tissue constricts the intestine. It’s important to break up that tissue as it’s forming with massages after surgery. Leading an active life as soon as possible after surgery diminishes this problem from developing. I’m not a surgeon but I’ve had enough of them that I picked up on a few things.

    • This reply was modified 2 years, 5 months ago by  idoncov.
  • idoncov

    Member
    November 21, 2021 at 1:56 pm in reply to: 20 Months since my sports hernia ”repair” with Dr. Brown

    Sports hernia repairs are much more complicated than true hernias. The core muscles work together in unison and when one tendon has issues then the injured compensates for it and injures other muscles/ligaments. As a result you need a doctor that looks at the entire core and treats all the components at the same time. Most pubalgia specialists are not knowledgable enough to do that. They are able to treat the most common injuries and consider it to be an end in the matter. The patient then discovers in physical therapy that the pain, although altered, remains. There are very few doctors that know how to treat a complex injury in the groin. It’s best to go to them because most doctors have a ‘can do’ attitude and will often convince the patient that they can do something that they really aren’t qualified to do. If you have a straightforward issue such a doctor will fix it and you will go away thinking he/she is a great surgeon. But in fact you just got lucky. I think that’s why you will often see a good review here and then have a bad outcome from that same surgeon.

  • Peter,

    Have you talked to Dr Meyers in Philadelphia yet? I spoke to those people by telephone and they seem very knowledgable. They seem to appreciate the complexity of the core muscles and what it takes to repair them.

    Perhaps it’s time to get an attorney.

    These doctors don’t really know what they’re going to find when they open you up. It may be unreasonable for them to tell you what they’re going to do before the surgery. To a degree we put our trust in them. I can see how you would have chosen Dr Brown. He has been given many accolades on this website. On the other hand, most of those were straightforward repairs.

    Igor

  • idoncov

    Member
    July 27, 2021 at 1:09 am in reply to: autoimmune syndrome and knee replacement

    Thank you. I was not familiar with this doctor but after searching online I found your interview and watched the whole thing. I felt like I was watching a biography of my experience. He definitely knows what he’s talking about and I felt such a relief to hear somebody talk about something which the medical field has been denying. I even felt that one of the patients you mentioned in the interview was me.

    At the very end he tells about how to get in touch with him and it seems that a face to face meeting is required. Is there a way to simply ask him a question by email since I am not actually ill anymore?

    There is one thing that may be of use to the medical community. He stated that all of the people with this immunological illness are genetically predisposed to it. I don’t believe I was originally. I lived in an older apartment for 15 years that had severe mold issues and I know for a fact that that drove my immune system down. I know it because I became more sickly as the years went by. This was followed by 5 years of heavy doses of medication to rid the body of a different fungal infection. I believe it’s very likely that the reaction to the mesh would never had occurred had my immune system been normal, as it was before moving into said building.

  • idoncov

    Member
    April 4, 2020 at 10:02 pm in reply to: Hernia belt does it help prevent reoccurrence

    I don’t think it prevents a recurrence but it reduces the likelihood of a recurrence. If you lift something heavy enough you will still have a recurrence. I think you can be less careful with a belt. It raises your intestines above the site of the hernia so the downward pressure created on the opening when lifting is greatly reduced. In my opinion it also helps healing in the initial stages.

  • idoncov

    Member
    April 4, 2020 at 9:51 pm in reply to: Remove Mesh – autoimmune problem solution

    “how was the screen removal surgery experience for you? was it open or robotic? Did you have any nerve damage or neurectomy during the surgery?”

    My mesh was put in laparoscopically and removed the same way.

    The repair was for an umbilical hernia so there was no neurectomy and no nerve damage.

  • idoncov

    Member
    March 29, 2020 at 4:43 am in reply to: Chills after robotic hernia repair

    If that low grade fever continues for a long time it could be your body’s response to the mesh. I had a low grade fever that lasted a year after the mesh was put in and only stopped after mesh removal. The presence of abscesses revealed only during mesh removal explained why I had that fever. I’m not saying that is your cause but I wouldn’t just dismiss it either. In fact, that was one of the difficulties in working with medical professionals. They tend to dismiss far too much.

  • idoncov

    Member
    March 29, 2020 at 4:21 am in reply to: Remove Mesh – autoimmune problem solution

    Yes, I have. There is an immediate relief to the pain after the mesh was removed. Your fevers go away at this time as well and there is an increase in energy almost immediately but not to a full extent. But the systemic autoimmune issues remained for me for about 2 years. After the mesh was removed I had heightened reactions to almost all foreign fabrics. Socks, bedsheets, pajamas, you name it had to be changed to all cotton. But as time went on the tolerance came back and no reaction any longer.

    Rashes would develop during times of stress. At first it didn’t take much at all. Just a two hour drive in the car would activate itchy rashes. This took a long time to pass, about 2 years. During this time it took more and more stress to bring it on. Now that has completely gone away and things are back to what they had been.

    I have a history of shingles. The autoimmune reaction from the mesh cause an activation of shingles that was ongoing during and after the mesh removal. I had to take up to 2.5 grams of acyclovir daily to suppress the virus, an amount that is normally only used for 10 days during an outbreak. This went on for almost 2 years. Now the immune system has normalized and I take the normal small dose I took before the mesh.

    The other thing is fatigue. It does not go away with mesh removal. You find yourself dozing off for no reason throughout the day during this period of time. Again, this comes back with time. And with it a desire to eat and enjoy food.

    So in my case (I had the mesh in for a year) all of the autoimmune issues did get resolved but it took about 2 years.

    Hope this helps.

  • idoncov

    Member
    February 28, 2020 at 8:48 pm in reply to: inguinal hernia mesh repair and allergies/urticaria

    I had a major allergic reaction to the mesh placed inside of me yet the allergy skin tests were so small as to be inconclusive. Based upon the skin tests it wasn’t clear whether mesh removal would help me much. However, once they opened me up there were abscesses all along the margins of the mesh. After the mesh was removed I remained hyper allergic to various allergens for a period of about 2 years, reactions which I had never had before the mesh was inserted. So, I would not be so certain that those tests prove anything. Certainly if the tests prove positive I would be leery of mesh but even a negative result doesn’t guarantee that you won’t have complications.

  • idoncov

    Member
    February 19, 2020 at 1:14 pm in reply to: Tailored Approach?

    I agree with kaspa’s last statement. With all the comments left here about repair issues by numerous surgeons why would you go to a physician and tell him to do as he sees it. That is essentially a tailored repair. A tailored repair takes all the power you have as a patient and gives it to them. The best approach is to really become familiar with all methods of repair and go to physician who is best at doing your repair. That’s from my personal experience.

  • idoncov

    Member
    February 17, 2020 at 5:04 pm in reply to: Singer has to have his mesh removed

    “Seems to me only the peritoneum is standing in the way between the Hernia mesh and ones bowels.”

    In my case there wasn’t even that. The mesh was right on the large intestine. It’s no wonder I had continuous daily problems with bowel movements for the full year that the mesh was in.

  • idoncov

    Member
    January 22, 2020 at 5:30 pm in reply to: any consensus on “best” nonmesh repair?

    I believe that a Shouldice is considered the gold standard non mesh repair for inguinal hernia. It has a 50 year great track record.

    It has been argued here by some surgeons that a best repair depends on the type of hernia and the condition of the patient.

  • idoncov

    Member
    January 22, 2020 at 5:26 pm in reply to: any consensus on “best” nonmesh repair?

    I believe that a Shouldice is considered the gold standard non mesh repair for inguinal hernia. It has a 50 year great track record.

  • idoncov

    Member
    January 14, 2020 at 5:57 pm in reply to: “My Natural Hernia Cure” exercises

    Please provide link to video.

  • idoncov

    Member
    August 11, 2019 at 2:07 am in reply to: 2 months post op

    I’ve had several hernia surgeries in the last 3 years, some successful and some not. It is normal to still feel pain at 2 months but it should be decreasing. If you had a successful surgery you should be able to notice significantly less pain say every week or two weeks (not day to day). If your pain, on the other hand, is increasing or staying the same then that would be cause for concern.

    When my mesh surgery went wrong I knew within 4 months that this was not normal, not right.

  • idoncov

    Member
    July 2, 2019 at 2:13 pm in reply to: Can hernias heal without surgery?

    Webster’s definition of a hernia: [h=2]Definition of hernia[/h] a protrusion of an organ or part (such as the intestine) through connective tissue or through a wall of the cavity (as of the abdomen) in which it is normally enclosed

    How can the sides of a cavity grow back together when there is an organ separating the two?

  • idoncov

    Member
    June 21, 2019 at 5:33 am in reply to: Surgery experience with Dr Brown

    What a coincidence. I had a right inguinal hernia no mesh repair done by Dr Brown on May 3rd, except that I convalesced at Motel 6 South. So far so good. Knock on wood.

  • PeterC

    You need to be evaluated by a Sports Hernia Specialist, not a Hernia Specialist to get the best diagnosis.

  • idoncov

    Member
    June 10, 2019 at 2:45 am in reply to: Repair after mesh removal

    Has there been a hernia recurrence? If not then the hernia repair that was done when the mesh was inserted may still be effective. In my case there was no hernia and therefore only the mesh was removed.

  • idoncov

    Member
    July 26, 2021 at 8:04 pm in reply to: ARE THERE NO POSITIVE RESULTS FROM HERNIA MESAH REMOVAL????

    Small world. I had my initial hernia repairs done in Bend, Oregon as well (St Charles Hospital). Both the inguinal and incisional umbilical hernias were repaired with mesh and both failed. That started me on a road of horror that still has not ended. The repairs performed included both Dr Brown and Dr Towfigh.

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